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Thanks for all your information I can’t stand the medication, very dizzy, out of sorts, blurry vision. Spike
Yes, I got a VNS device put in place as of 2008 to lower the activity of my seizures. I am doing quite well having the device as it manages my particular needs.
I had a VNS put in 2011. It really has helped me a lot with my seizures. I am very sensitive to it so I can only have it set on the lowest settings. I had the battery replaced last year and when they turned it on they changed the settings. I had a terrible reaction to it. I didn't know anyone, I don't remember anything that happened to me for almost a week. I had shortness of breath , chest pains and seizures. I couldn't talk or stand up straight. At the time they didn't realize it was the VNS that was causing the problems and turned the settings higher. I was so out of it I couldn't think straight. I finally realized I started feeling like this the day they put the new battery in and turned it on. They set it back to the settings I had before but it took another 2 1/2 weeks until I felt normal again. Now that it's back to normal I rarely have any seizures. You just have to make sure you get it set up right for you.
No, I Haven't
One MyEpilepsyTeam member shared their experience: "Since my VNS was inserted 12 years ago (with one battery change two years ago), my seizures have been controlled. I have a checkup every six months."
That's a pretty encouraging story! Here's a general overview of what people can expect with VNS: The Good News
- Seizures can Show Full Answer
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