Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How did I get into MyEpilepsyTeam? This is a resource that should be available to epilepsy patients on day one.

A MyEpilepsyTeam Member asked a question 💭
Arvada, CO
March 4
 · 
Reactions
A MyEpilepsyTeam Member

My cousin told me that theres websites i can communicate with others with the same condition i researched i found this thought it was cool so now i dont feel alone having epilepsy being that nobody in my family has it wich is good. So now every time i feel down i come here. i thank all of you for taking time to read my coment and also if you read my story

March 4 (edited)
A MyEpilepsyTeam Member

I was going to a website called forume4e in 2014. I was on there for a few years. I found out about this at around the same time. I signed up to here but never really went on here. forume4e gradually had less and less users then in 2017 they stopped all new posts on by 2021 it was shut down. A few years later I was on here.

March 4
A MyEpilepsyTeam Member

I used to go to epilepsy.com and we'd have live conversations. Then when they discontinued that, I started coming here.

March 4
A MyEpilepsyTeam Member

I have been part for a long time, do not remember how I learned about it.

March 4
MyEpilepsyTeam

How did you become part of MyEpilepsyTeam?

It's wonderful that you've found this community! You likely signed up through the website or were referred by someone who knew about this resource. MyEpilepsyTeam is designed specifically for people with epilepsy and their loved ones to connect, share experiences, and support each Show Full Answer

How did you become part of MyEpilepsyTeam?

It's wonderful that you've found this community! You likely signed up through the website or were referred by someone who knew about this resource. MyEpilepsyTeam is designed specifically for people with epilepsy and their loved ones to connect, share experiences, and support each other.

You're absolutely right that this should be available from day one. Many newly diagnosed members express similar feelings about wishing they'd known about the community sooner. Healthcare providers, hospitals, and medical practices sometimes offer referrals to support resources, but awareness varies.

If you found this helpful, consider mentioning MyEpilepsyTeam to your healthcare team. They might start recommending it to other newly diagnosed patients. You can also welcome new members yourself by saying hello, answering questions in the Q&A section, or simply liking and hugging posts from others who are just starting their journey.

The community has over 122,000 members who understand what living with epilepsy is like, and you're now part of that support network.

March 4

Related Questions

View All
Poll Shows How Much Epilepsy Symptoms Can Vary Day to Day
Epilepsy Awareness: How To Get Involved
Getting Started on MyEpilepsyTeam
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In