Answer Summary
Members shared a wide range of ideas for what epilepsy nonprofits should do more of to help people live better with epilepsy, from funding... Read more
I wish there were more ways to let people know about epilepsy. I never heard about epilepsy until I got it. Once I heard about it, I went to a doctor so my doctor provided me with more information and medications!
I think they should encourage more involvement from people who are positive signs of epilepsy control. How many people battling with epilepsy do you hear saying, "I'll believe it when I see it."? Then let's let these people meet others who have gained control of seizures so they can explain how they gained control and how they are maintaining control.
Helping a person in need !
The one thing that I don't really see Epilepsy NFP's do enough of is helping people get in to work. The epilepsy NFP where I am was once upon a time also working as a JSP but not anymore.
Everything AI said plus helping with seizure response dogs funding, helping with a seizure monitor such as the sami or epi monitor, help with college tuition because for me I struggled it took me 5 years to get a 2 year degree and unfortunately I didn't have a high enough grade in some classes so they had to be retaken, advice for legal when it comes to workplace issues, help when unable to afford hospital bills from prolonged/cluster seizures , provide free/low cost medical alert bracelets and necklaces