Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Owatonna, MN

I just had my blood test and the depakote level hardly showed ,my doctor hasn’t emailed back on what I should do even though my auras have came back .

February 13
 · 
Reactions
A MyEpilepsyTeam Member

My seizure med never controlled my seizures 100%..
it’s called refractory Epilepsy

Resistant to medication

February 14 (edited)
A MyEpilepsyTeam Member

Im allergic. I took for a,long period,but time as a kid. They had taken me off it. Several yrs,later while I was in the hospital for staticus epilepticus . They tried giving me a shot of it. The seizures became more severe. Because having been on it for a period of and then taking me off it. I had built up an immunity to it.
Basically the same with Tegretol. I took it over 14 years. It got to the point it was no longer working for me.

March 7 (edited)
A MyEpilepsyTeam Member

Dilantin and Tegretol I can't have either

March 7
A MyEpilepsyTeam Member

I don't think I've ever become immune but the closest to this is when I was on Tegretol. They put the dosage up and it was getting towards the highest they could go. I was told there was high chance issues could happen and it would need to be monitored. I had to have blood tests for the next 4 months I lasted 2 months and they took me off. The main issue was WBC started to drop and LFT was going up and they new it would keep happening and get worse.

February 13
MyEpilepsyTeam

Has anyone become immune to their anti-seizure medication, especially when blood levels are low and auras return?

It's concerning that your Depakote levels are barely showing up and your auras have returned. While people don't typically become "immune" to anti-seizure medications, your body can process them differently over Show Full Answer

Has anyone become immune to their anti-seizure medication, especially when blood levels are low and auras return?

It's concerning that your Depakote levels are barely showing up and your auras have returned. While people don't typically become "immune" to anti-seizure medications, your body can process them differently over time, or the medication may become less effective for various reasons.

Low blood levels of your medication could mean:

* Your body is metabolizing the drug faster than before
* There's an absorption issue
* Your dosage may need adjustment
* There could be interactions with other medications or foods

Blood tests are specifically used to monitor how well your epilepsy medication is being absorbed and maintained in your body. This is especially important when new symptoms develop or breakthrough seizures occur.

Since your auras have returned and your doctor hasn't responded yet, it's important to follow up more urgently. Try calling the office directly rather than waiting for an email response. If you can't reach them and your symptoms worsen, consider contacting an on-call neurologist or seeking immediate medical attention.

Don't adjust your medication dose on your own - missing doses or taking extra can both trigger seizures. Keep taking your medication as prescribed until you hear from your healthcare team.

February 13

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Rīga Latvija

A MyEpilepsyTeam Member asked a question 💭
Oldbury, UK