I refused to keep my independence, plus the first 16years of my life I was in a children's homes due to having epilepsy, where I was severely ill treated during late 60s and 70's my family turned against me as well, I thought no more being locked in due to having epilepsy.
Answer Summary
Members strongly supported preserving independence when asked about moving to a care home to avoid loneliness, with many sharing that... Read more
I can't imagine babs, I was always under mom's care. I had a pretty normal life like driving, working and even own apartment. The driving and working i had problems with due to seizures. I was having too many in apartment and public that I opted to move back in with mom. By then she was in wheelchair with other existing problems. I was her official caregiver and proxy for over 10yrs now. We kinda took care of eachother. Sadly mom recently passed last nov29th. I received her house in will. I haven't had any seizures. They're under control with 3 AEDs. Haven't had one for over 3yrs now. I feel like I should take in a roommate or a wear a medic alert. I will hold on to my independence for as long as I can. I seen what those places are like. Sympathize Babs π
Mo Brathair Sean .. Jen and me believe the hardest thing about your life is that you want to see progress and you do not ., this is because all the trauma to your brain make that impossible for you to comprehend ., and that be not your fault mo bro ., there are some on here we be meeting who be suffering same ., they understand how you feel ., others cannot .. that not be their fault either .. it be like trying to understand how an orange taste if you have never eaten one ., this be pain no med or surgery can fix .. this be what each of us bear .. Our Father know this pain because He know ALL .. just like no one but another person who be losing a leg can know the sadness and pain I feel by losing mine .. we have to experience it before we understand .. like at work .. they like you Sean .. they just cannot understand how you feel .. because they not walk in your shoes .. they do not see the world as you do .. this be sad yet true .. the One who truly understand each of us be the One Who made us ., so Trust Him mo bro .. He Know .. He will be with you always holding your hand .. carrying you when you cannot walk .. you and me .. and all on here who suffer as we do .. we too understand ., and we be here for you .. always ., just as you be here for us .. we be getting through all things .. together.. hugs and prayers in quiet love to you mo bro .. your forever friends William and Jen ππππ€π€ππππΆββοΈπΆββοΈπΆββοΈβ΅π―π―π―π±βπ»ππ
Dearest Sean .. you be loved and cherished as our brathair always and forever mo bro .. that be a promise from Jen and me to you ., and by now you be knowing how we feel about promises ., we be root people ., we be here for you Sean ., your forever friends William and Jen πππππ€π€ππππππ―
Mo Brathair Sean .. that tree in pic be our 100 year old white pine .. three year ago we be having terrible ice storm in April .. many trees down .. we lost four of our big pines .. yet even though this big tree lose 30 percent of his branches .. still he be hanging on to life .. took 2 weeks until power back on ., those big branches came crashing down on our rose garden .. all but two roses be crushed .. yet Jen and me dig up the roots ., we move to front and side of house wbere they be safe .. sadly many not survive ., yet many do .. and we still be cutting up those giant branches that fall .. we have them scattered all over our property marking fence line .. cause chain link fence be destroyed too .. our Joe be in charge of that project .. he do grand job .. even with large branches missing .. my Jen still call that old tree beautiful .. and those soft needles he shed make mulch for our surviving roses .. so .. never give up mo bro ., always Our Father be finding a place for us where we be loved .. and important work for us to be doing .. hugs and prayers with quiet love to you we be sending mo bro .. gum beannaiche adh Dia thu ., God Bless you dear friend and brathair ., your forever friends William and Jen πππππ€π€π―π―π―ππ
Pic is our Joe holding a giant icicle from that storm .. like a light sabre!π
Nathan .. we we thanking you for your beautiful words .. and though your own story be cridhe briste π .. heartbreaking .. there be this truth ., faodaidh cridheachan briste gaol a thoirt leis na piosan beaga uile .. broken hearts can still be loving with all the wee pieces .. and so .. bidh. Fluraichean laidir a fas bho aiteachan briste .. strong flowers be growing from all those broken places .. as Our Father be strengthening us so dear friend .. gaol gu samhach combla bidh sinn.. loving quietly together we be .. is sinne an fheadhainn a ghiulaineas daoine eile.. for we be the ones who be carrying others ., gum beannaiche adh Dia thu , Nathan .. may your Easter be blessed .. William and Jenπππ±βπ