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A MyEpilepsyTeam Member asked a question 💭
Eugene, OR

I can’t find a neurologist so I’m stuck with a psychiatrist who prescribed Trileptal and clonazepam. When I was on 8 mg of clonazepam with Trileptal, I was told by my neurologist “don’t let anyone mess with this medication cocktail. The psychiatrist put me down to 4 mg of clonazepam. At this low a dosage, my insomnia is worse, I have tingling in head and face and worsening breakthrough seizures. I’ve been on so many anti seizure meds that the only one that has helped me was 8 mg clonazepam with… read more

January 24
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A MyEpilepsyTeam Member

The first thing I would do is find one. It sounds like the psychiatrist has adjusted the meds for other issues but this should really all be run through a Neurologist regardless. The sub clinical seizures may or may not be a issue. In most cases there just seizures that turn up on eeg so there just classed as background seizures normally caused by TBI. I have this. Every time it pops up it just means the eeg is back to how it was and I'm classed as not having a seizure.

January 25
MyEpilepsyTeam

What medications are prescribed for subclinical seizures?

Subclinical seizures are treated with the same antiepileptic medications used for other seizure types. Common first-line medications include:

* Valproic acid (Depakene)
* Levetiracetam (Keppra)
* Lamotrigine (Lamictal)
* Carbamazepine (Tegretol)
* Topiramate (Topamax) Show Full Answer

What medications are prescribed for subclinical seizures?

Subclinical seizures are treated with the same antiepileptic medications used for other seizure types. Common first-line medications include:

* Valproic acid (Depakene)
* Levetiracetam (Keppra)
* Lamotrigine (Lamictal)
* Carbamazepine (Tegretol)
* Topiramate (Topamax)
* Oxcarbazepine (Trileptal)

Benzodiazepines like clonazepam (Klonopin) can also help control seizure activity, though long-term use can be limited by side effects and tolerance development.

Your situation sounds really challenging. The medication combination your previous neurologist prescribed (8 mg clonazepam with Trileptal) was working well for you, and reducing the clonazepam to 4 mg has led to worsening breakthrough seizures, insomnia, and other symptoms.

It's concerning that your psychiatrist changed a regimen that your neurologist specifically said not to alter. While psychiatrists can prescribe these medications, epilepsy management really benefits from neurologist expertise.

Here are some suggestions:

* Contact your previous neurologist's office to explain the situation and ask if they can help coordinate your care or provide guidance to your current psychiatrist
* Request that your psychiatrist consult with a neurologist about your medication changes
* Look into telemedicine neurology services, which might give you access to epilepsy specialists even in areas with limited providers
* Contact your insurance company for help finding an available neurologist
* Consider reaching out to epilepsy centers or university hospitals that might have longer wait times but specialized care

Given that you've tried many medications and only this specific combination worked, it's important to advocate for returning to what controlled your seizures. Document your increased seizure activity, insomnia, and other symptoms to share with your healthcare providers.

Living alone with epilepsy requires extra safety considerations, especially with breakthrough seizures. Make sure you have emergency contacts readily available and consider medical alert systems.

January 24

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