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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

A neutral one? Do you think you go over the condition you have and ask yourself about it about the same as people in family do and the

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Medical system do, or aren't that way with that? Curious and wondering is all? I 'm going to say it's a good balance of all of them mentioned here with the post here, I do reflect on my current condition I have and do daily for about 3min to about 7 min with on ave, sometimes a little bit more than that, and my overall health in general, I don't get stressed out about it but do bring up anything out of the norm with and bring up to my doc about if it's a something I think should bring to and is… read more

January 6
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A MyEpilepsyTeam Member

I will discuss my epilepsy with anyone who will listen. When I am on my own, I rarely think about it.

January 17
MyEpilepsyTeam

How do you balance self-reflection about epilepsy with input from family and your medical team?

It sounds like you've found a really healthy approach! Taking a few minutes daily to check in with yourself without getting stressed shows great self-awareness. Keeping a seizure diary is excellent - many members find this Show Full Answer

How do you balance self-reflection about epilepsy with input from family and your medical team?

It sounds like you've found a really healthy approach! Taking a few minutes daily to check in with yourself without getting stressed shows great self-awareness. Keeping a seizure diary is excellent - many members find this incredibly helpful for tracking patterns and triggers.

Your balanced perspective is spot-on. Here's why it works:

* You're monitoring your own condition and noting anything unusual
* You're listening to family and friends' observations (they might notice things you don't)
* You're keeping your doctor informed with documented information
* You're not letting it consume your thoughts or create anxiety

A MyEpilepsyTeam member shared a similar approach: "I keep a pre-seizure journal and realized patterns I hadn't noticed before." Another emphasized, "I look at what I've got going for me rather than dwelling on what's wrong."

The key is exactly what you're doing - staying informed and aware without letting epilepsy define every moment of your day. Your 3-7 minute daily check-ins sound like a perfect balance between being responsible about your health and living your life fully.

Keep sharing information with your medical team, especially anything out of the ordinary. That diary you're keeping is valuable data that helps them help you better.

January 6
A MyEpilepsyTeam Member

I don't talk about it much unless I'm seeing my Dr. and questions are always asked on visits. If with a friend who asks about things I let them know, other wise I enjoy not letting having Epilepsy ruin my life.

January 6
A MyEpilepsyTeam Member

I don't worry much about my epilepsy - it's as well controlled as its ever going to be, and has not stopped me achieving in life. One of my New Years resolutions is to stop ignorant, ill informed third parties interfering in my life - i.e. those people who know little about epilepsy. One of the best ways to handle these idiots is to simply turn my mobile phone off. Get out and enjoy life!

January 6
A MyEpilepsyTeam Member

I have so many issues that I try not to think about it. Life is too short. My new year’s resolution is to stop thinking about everything. It doesn’t help.

January 6

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