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@A MyEpilepsyTeam Member
My first RNS (RNS-300) has died on me too. Instead of just replacing the battery though they removed the whole device and replaced it with the RNS-320. Like you said it wasn’t a big deal replacing it as I just had an outpatient procedure done where I got to go home the same day. I never have seen a decrease in my seizures since I got the RNS but at least we can send seizure info into our doctors every day so no more EEG’s.
I have had the RNS for about 7 years, had to have the battery replaced (which was not a big deal)). It wasn’t working for me at first, except recording my seizures). But within the past few years, my family, friends and doctors can tell a big difference with the way I talk. I do still have seizures but much less severe and a dip in the amount of seizures I have a month.
Yep I have to wait till the new one comes out to try I'm along the same path with ya I think. What is rns never heard of it?
@A MyEpilepsyTeam Member
The Neurostimulator (RNS) is a device that was surgically implanted into my skull. It is supposed to help reduce seizures but not only that it records my brain activity 24/7. So every seizure I have is recorded. Before I go to bed every night I turn on the RNS monitor and place a wand on my head. It will download all of the activity for the day and I’ll hit “Send” and the information is sent to my neurologist. When I see my neurologist they’ll look over all of my seizures on their computer and write down any important information.
@A MyEpilepsyTeam Member
I’ve been on every medication that exists for epilepsy but having drug resistant epilepsy none of them have worked. I have the RNS now but still have seizures
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