My family members think I don’t listen. When in reality, I don’t understand. I will for one minute and then it’s gone. My memory is getting worse even though I haven’t had any clinical seizures in four months, I think I just want to get away from these people, I grew up in New Jersey. I found HOME in Georgia. But because I was looking at surgery, I had to come back here. If you have read my story, you’ll know that surgery was aborted because somebody hit a vein or artery with a catheter and my… read more
@A MyEpilepsyTeam Member This is why we are all on the epilepsy team. We can support each other and get advice and support. I know there are hard days for you, but everyone here likes you so much and wants to help in any way they can. Being depressed can also take a lot out of you. Sometimes it has been so bad that I stay in bed until my husband comes home from work. Some days, I am only out of my pajamas for about 2 hours a day. But then I get a bee in my bonnet and clean my closet. You take care. I hope you have a good night
There’s a reason for You to survive. Remember that 💜
I am so sorry you are having to deal with your epilepsy and your family. It has to be tough when no one in the family understands what you are dealing with. I am glad you have a therapist. Mine has really helped.
@A MyEpilepsyTeam Member
I care and so does everyone else, because you are such a lovely person with so much to offer. I know everyone wants the best for you too. You are in my thoughts. Reach out any time you want to talk. Hoping you have a great Saturday.
@A MyEpilepsyTeam Member When I have a Telehealth visit with my therapist I go into my room, shut the door and turn on the TV at low volume. I live in house that is like an amplifier, and my son nor my husband has ever heard me. You can also look for a therapist online. Your PCP or neurologist should be able to make recommendations. We are all here to support and help you.
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