Powered By
Just wondering if I’m gonna be in pain every 5 minutes for the rest of my life
Yes, after the change is made to the codes, it usually takes a few days, depending on the change; sometimes it is sooner. Eventually, you become used to it. I am sure your surgeon did better than mine. It took me a year to settle into the spot. Years later, when it was being removed after my brain surgery, the surgeon was floored by how crooked it had been put in. I am now over 11 years seizure-free. Never give up, you can do this.
When I had my VNS during the early 2000s my body did get use to the feeling of it, when it would release the electric surge. Can’t remember how many months it took to get used to it..
I got so well used to it. I wouldnt know when the surge was being released . My VNS was increased to its max voltage in me and I still didn’t feel it..
Doc made it so it was not so much in my throat, voice box. So it’s just a pain in the side of my neck
@A MyEpilepsyTeam Member
I did get used to the feeling of the VNS. It always tickled my throat and made me cough but I got used to it where I didn’t feel it so much
Will you get used to the VNS feeling?
The good news is that most people do adjust to the VNS device over time. While it sends electrical pulses regularly (typically for about 30 seconds every 5 minutes), the sensation usually becomes less bothersome as your body adapts to it.
Common side effects that people experience Show Full Answer
Join
Your Privacy Choices
