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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 30, 2025
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A MyEpilepsyTeam Member

I’ve been weaned off meds while being put onto a different AED (drug) , many times . All because I my doctor couldn’t find the right medications to help control my seizure 100% .

My Dr . Told me That I have Refractory Epilepsy
(resistant to the medication ).
Talk to your Dr. maybe you have the same thing.

September 30, 2025
A MyEpilepsyTeam Member

What Quinn commented about isn't uncommon to happen when changing meds. Thankfully it hasn't happened often with me. I've been through similarities once when changed to another med and it took time for me to adjust. Thankfully no longer on that med. Hoping your time Amy won't take time to adjust, inform your Dr. about it also.

September 30, 2025
A MyEpilepsyTeam Member

Amy switching from one drug to another will happen. It’s not uncommon every time I do a switch ever I normally have issues myself. You’re not alone in that one. Your neurologist should’ve told you that if he or she didn’t. There’s always risk switching from one drug to another. Waiting from one drug to a new one will make seizures occur.

September 30, 2025
MyEpilepsyTeam

Onfi (clobazam) is one of several common anti-seizure medications used to treat epilepsy. When starting any new medication, it's important to work closely with your neurologist to monitor how well it works for you and manage any potential side effects.

Common side effects that can occur with anti-seizure medications like Show Full Answer

Onfi (clobazam) is one of several common anti-seizure medications used to treat epilepsy. When starting any new medication, it's important to work closely with your neurologist to monitor how well it works for you and manage any potential side effects.

Common side effects that can occur with anti-seizure medications like Onfi include:
• Dizziness
• Fatigue
• Insomnia
• Mood changes
• Irritability Remember that medication management is very individual - what works for one person may not work for another. Make sure to:
• Keep track of any side effects you experience
• Communicate regularly with your neurologist about how you're feeling
• Never stop or adjust medications without consulting your doctor
• Ensure you don't run out of medication, as missing doses can trigger seizures

September 30, 2025

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