Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭

Hello
I take 12 mg of fycompa (perampanel) as an extra drug to my other 3 other anti-seizure meds
I took either 16mg perampanel last evening
I normally have 8 mg + 2 mg + 2mg ready in advance together with all the other meds, as it took a long time to get the new pills from the local pharmacy.
Unfortunately, I was only planning to add the 2mg fycompa pills to my pill box but I now realise that I must have been really tired already, so I ended up adding and taking an extra 8mg.
Right now it's… read more

June 21, 2025 (edited)
 · 
Reactions
A MyEpilepsyTeam Member

I Started Taking Fycompa 8 mg In 2017 & I Now Take 12 mg, The Highest Dosage. Best Meds Out Of Several Meds I Have Taken Since 2000. In The Beginning, I Was Taking It In The Afternoon & Feeling Tired Until I Realized It Was A Strong Night Medication, Which The Neurologist I Had At The Time Never Told Me To Take In The Evening. I Also Starting Having Auras For The First Time With Fycompa. Good Luck & Have A Seizure-Free Day & Week.

June 23, 2025
A MyEpilepsyTeam Member

Sorry you had such a scare. Once I took all my medicine twice in one night, and I was okay. The next day, I bought a pill box.

June 27, 2025
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, I will put her on my prayer list as well!

June 23, 2025
A MyEpilepsyTeam Member

This sound weird, but both of my parents died before my seizures became very bad. The same thing happens to me at night. I have had 2 brain surgies, and am going to have my 3rd. If you don't mind I would like to put you on my prayer list

June 23, 2025
A MyEpilepsyTeam Member

When my mother was alive and I was still having seizures. When I would have a seizure, my mother would give me an extra dose of Medicine. It would make me "high", dizzy, and tired. I would sleep for hours. When we discussed it with my Neurologist, my Neurologist told my mother NOT to do that anymore!

June 23, 2025

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Kokomo, IN

A MyEpilepsyTeam Member asked a question 💭

A MyEpilepsyTeam Member asked a question 💭
Owatonna, MN

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In