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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Bensalem, PA
June 8, 2025
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A MyEpilepsyTeam Member

I started taking Onfi before it was approved by the FDA in the U.S. I bought it "For personal use only". It was sent to my Doctors Office, where I picked it up. I was being treated for Breast Cancer, but the Chemo and Radiation Therapy was not working. It was one of my meds. So I was tapered off and added the Onfi. It was sent by mail.

June 9, 2025
A MyEpilepsyTeam Member

I took Dilantin for a while. Blood work showed that my ammonia levels were three times normal. High ammonia levels can affect your liver. The doctor stopped the Dilantin, and I went back on phenobarbital.

June 10, 2025
A MyEpilepsyTeam Member

Thank you for your answer

June 10, 2025
A MyEpilepsyTeam Member

I have taken Onfi short term as a rescue med but I haven't switched to it and used it FT.

June 8, 2025
A MyEpilepsyTeam Member

I have switched from Dilantin . But it wasn’t to Onfi.

June 8, 2025

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