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Suggestions we may bring up to them? I'm wondering if that they may consider something we are maybe thinking of even though we aren't a medical person but brought it to their attention, from say a site like this and from a friend, family member or something that came to mind by yourself, could that be a possibility in happening, curious and wondering your thoughts here post?

April 7, 2025
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A MyEpilepsyTeam Member

I had a doctor tell me me to stop reading Dr Google. Well I was reading my hubby's test results last night and looked up the meaning and told him I'm sending a message to your Cardiologist because I know you won't but there are things on this CT that your other doctor did to look at his area and they also looked at things that effect your heart.He needs to know. He grumbled about Dr. GOOGLE and how I was told to stay Out of it.. He said I can always ask my other doctor what he thinks. I said he's going to refer you to your Cardiologist and than talk about what he was looking for.

April 7, 2025
MyEpilepsyTeam

Question: Can I suggest treatment ideas or options to my doctor that I've learned about from others or thought of myself?

Yes! Doctors can be great resources, but they may not always think of everything. It's absolutely appropriate to bring up ideas, concerns, or treatment options you'd like to discuss. Your doctor can then Show Full Answer

Question: Can I suggest treatment ideas or options to my doctor that I've learned about from others or thought of myself?

Yes! Doctors can be great resources, but they may not always think of everything. It's absolutely appropriate to bring up ideas, concerns, or treatment options you'd like to discuss. Your doctor can then evaluate if these suggestions might be helpful for your specific situation.

For example, you might ask about specific medical alert devices, seizure tracking apps, or other tools you've heard about from others managing epilepsy. While your doctor makes the final medical decisions, having an open dialogue about your ideas helps create better partnership in your care. Remember that while sharing ideas is encouraged, each person's epilepsy management needs are unique. Your healthcare provider can help determine which suggestions might work best for your specific circumstances while ensuring your safety.

April 7, 2025
A MyEpilepsyTeam Member

I don't recall ever doing that.

April 7, 2025
A MyEpilepsyTeam Member

I have, and the dr’s actually appreciated it. I was looking through one of my conditions and I took it further than either myself or the dr’s usually do Long story short, I found out why I was having burning patches and a 365 rash. I took it to one of my drs and she wrote everything down so she could look it up when she could. She called the next day and said that I had found the reason why I had these problems; but the downside is there’s no cure lol I’ve also suggested or said other things- one from this site; and it’s been flat out rejected for one reason or another. So while I’ll suggest something or said I’d found something on the net or wherever, they do listen and some appreciate it. Others aren’t so receptive and will say Dr. Google, or if u can diagnosis urself, make urself better. I got that answer when the dr asked why i was there and I said I had a really bad cold and either my chronic bronchitis or chronic laryngitis was starting up.

April 7, 2025

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