I was diagnosed with epilepsy at 32 it came out of nowhere..onset and partial seizures.. I have had to deal with it for 13yrs.. and it was very devastating at first because I was fearful of myself.. I had never seen a seizure..all I know is one day sitting in my living room my head felt painful, I couldn’t see I panicked and woke up in the hospital bed..3 seizures back to back.and have had to manage my life around them..everything was affected my motherhood,work history,mental health and appearance went from 140 to 96 pounds due to fatigue..these last few years are better because I have finally accepted the reality of me being epileptic,gained some weight back..but having to be reminded of events and situations that happened 10 years ago that I can’t remember happening due to memory loss is embarrassing.

I began having simple partials at around age 55, but I didn't know what they were. They were classic, aura, feeling of doom, and a phantom smell. What I didn't realize was that much more sporadic, and interspersed with the simple partials, I was having complex unawares also. Those give me no aura, no warning, and I don't notice a skip in time, just fatigue. People had asked me "You okay?" once in a while, and I had no idea why they asked, but eventually I had a couple in front of my wife and son. I still hadn't any idea this was happening until one night I had one on stage (I'm a working musician) in front of about 250 people. After I loaded out the sound gear, I was so spent, or I thought maybe too drunk that I didn't trust myself to drive home, so my wife drove us. At that particular venue the owner made sure I always had a bottomless Jack & Coke by my foot, so I had no idea how much I drank that night, and I'm not a big drinker. I found out that alcohol is a major trigger. All I remember was hitting the bed, physically spent. I woke up the next morning tied to a hospital bed in an incredible fog, confused and combative. I had apparently had a focal unaware in my sleep, tried to get up, and hit the floor unresponsive. Ambulance ride. I had an all-night cluster of focal unawares, end-to-end, all caught on EEG. They stopped them with Keppra. The MRI showed that I had a cavernous angioma in my right temporal lobe, likely congenital, but it showed scarring from a seepage of blood from some point in the past. I was 62, it was 2018 at diagnosis, seizure-free since 2019.

I have had temporal lobe seizures ever since I was 10 years old which was over 30 years ago. I’ve never made it 2 months seizure free.

I have Petit Mal and Grand Mal seizures. I got diagnosed at the age of 2 with Epilepsy Seizures and am now in my late 40s.

Focal and breakthrough was diagnosed with focal age 7 now last year breakthrough