I’ve noticed that I’m having more seizures that I can’t control with my medicine and my seizures are lasting longer and more severe.
What you're describing sounds like what medical professionals call "refractory" or "intractable" epilepsy, which occurs when seizures don't respond well to at least two different epilepsy medications. This is a serious concern that needs medical attention.
The experience of seizures becoming more difficult to control over Show Full Answer
@A MyEpilepsyTeam Member
From the age 10 to 40 years old my seizures have stayed at the same pace
My seizures never had a chance of worsening . I had left. temporal lobe.brain surgery . They helped reduce my seizures from sever to mild and moderate seizures . But I still had the average of 1 seizures a day o r30 seizures a month.
It wasn’t until 2022 when the DBS reduced my seizures a lot .
I started having them at 15 years old didn’t have as much as I do now I keep having them like once every two weeks it seems and I’m almost 30 years old now. I’ll be 30 at the end of the year.
@A MyEpilepsyTeam Member . From my teens to 2022 , I had the the 30seizures or once a day. That was always a fact of life. My seizures average never reduce, untill 2022 when I had my DBS done. My seizure have reduced to 5- 10 seizures a month, instead of the 30 a month.