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But I am doing some wishful thinking about this post, but say we that are here on this site and it was a set up say like a Woodstock kinda of setting, and all expenses are paid for, and say was a 10 day event, and none of any of the condition you have as for your symptoms or anything like that would happen during that time, would you be interested and go to It, I think I would, it would be a good time for people of our conditions and such etc to get together as the condition we have and meet… read more

February 27, 2025
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A MyEpilepsyTeam Member

Well you don't create great products or platforms like what this could turn in to without starting somewhere. This has only been going just over 10 years I think so it's still pretty new. So, anything could happen. Hopefully, it only gets better.

when it ccomes to in person meet ups. They do have these but these are generally run by epilepsy charities and are not designed for medical advice they are mainly about socal networking and learning to live better with the condition.

February 27, 2025 (edited)
A MyEpilepsyTeam Member

I think so. Might sound weird but what I tell someone else might be able to help them out. Especially if they have either just starting having seizures or they have a friend or family member that did.

February 28, 2025
A MyEpilepsyTeam Member

This is the frist site I've actually seen talking about seziures in general but yet agian there's hardly any other that soear about it

February 27, 2025
A MyEpilepsyTeam Member

Soúnds like a great idea Dave. A good way to meet other people who hàve the seizures that you have, Share your stories and have human contact which a lot of us lack. Share history of epilepsy through the ages and how lucky we are compared to people even 100 years àgo but especially 1000 years or more. There were some reall geniuses with epilepsy. I"m not one of them. Yep Dave it would be a blast.

February 27, 2025
A MyEpilepsyTeam Member

If I had the money to travel Id love to get together and meet. But unfortunately we are on a fixed income. It's a nice thought though.

March 9, 2025

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