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We feel a bit like some don't understand what we actually go through, but what about all the illnesses and diseases and conditions and cancers etc, and the people that have them, what is it like to have that and we don't know what it's like to have that condition that they have? Nothing against anyone and your thoughts about this ❓ but what do you think about this?

November 28, 2024
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A MyEpilepsyTeam Member

Other people may have invisible afflictions just like us, but they are not visible so we don't know what they have unless they tell us. It has to be visible to know, ;like someone using crutches or a wheel chair..

December 7, 2024
A MyEpilepsyTeam Member

Every person is going through something. It may be invisible but it’s there. Never judge a book by its cover.

December 5, 2024
A MyEpilepsyTeam Member

I feel that we are all dealing with something to some degree or another, be it depression, anxiety, or being worried or stressed because family members have problems. There are days when I feel blessed that epilepsy is the only thing I have to deal with.

December 3, 2024
A MyEpilepsyTeam Member

I believe everyone has something going on… we can always find someone who is worse off than us. This is what helps to keeps us grateful and kind. Not only with our health. Some of us are so Lucky to have a warm home, food to eat, a supportive family, or a safe environment to share our thoughts.
But yes each disease has its own trials and tribulations. How you choose to deal with them is completely different and up to you.

December 2, 2024
A MyEpilepsyTeam Member

If people cannot see something such as a wheelchair, walker, a hearing aid or cane for someone who cannot see well, it can be a different experience. Someone who experiences great pain if standing will find others may not realize she needs a chair to sit down. I have an App that keeps track of taking meds and if I have seizures. We will learn something in about 2 weeks from the EEG at home.

November 28, 2024

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Englewood, CO