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We all have have our own conditions and disabilities illnesses etc, and for the people who don't understand what they think about us differently and see us the way they do were to experience what we go through for a brief moment and actually know that is about, do you think afterwards they would have a different outlook on how they see you in the first place and such etc, nothing against anyone about the question here but how do you look at this question here and what are your thoughts about… read more
a day in our shoes is bound to change any ones perspective on hidden dis abilities as so many of us have multiple epilepsy syndromes which affect our day to day on a very subtle level unless we are having tonic clonics every second. i wouldnt wish the experience on anyone but do know that everytime we are not afraid to stand in our power and own epilepsy it changes our own field of possibilities in spreading awareness and getting the support we need to live here as a holistic being capable of contributing as our brains have access to more than the averege range of neurons even if shocked and seized into activation of creativity
Kelly, I think your phrase of: a day in our shoes ...... would be a good book title
@A MyEpilepsyTeam Member I agree, a day in our shoes would change anyone's perspective,
There are those many people I've known that have never cared about my epilepsy, only my character. Those are the people who've become life long friends. Just as it's a person's character that Is most important to me.
I agree with Michael, myself once had a seen what I looked like while up at the NIH. While up the first time had seen some1 have a gran mal, which let nurses know since was right there. Only thing I got out of it was seeing what I looked like since of course never saw before. Of course wishing the patient was fine too.
I think most people are afraid to see a person hurting or worse, someone dying. Yes they look at me different. I look at myself differently. I've been fortunate that only my family and close friend have seen me seize. I had seen both before my life changed after 65 years. It may have been easier for me to see everyone as I KNEW them before I had found out about their illness because I wanted to be able to help them if I was needed.
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