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I have recently been weaned off Zonisamide due to side effects. The Zonisamide is not going to be replaced by another AED. I am on phenobarbital and LamotragineER. I am just a little bit nervous about not having another medication added back to the mix. How many meds are you on and do you have problems when one of the medications is stopped? My seizures are well controlled, one every 2-3 years, but the last 2 were only 6 months apart. I realize I have nothing to complain about, but I am… read more
I love the 70's and 80's. Music was much better in those days. Thank you for reminding me
@A MyEpilepsyTeam Member
I was on Phenytoin & Lamotrigine both at therapeutic levels, fot many years. Like you I was controlled & but once I stopped taking the Phenytoin & slightly increased my Lamotrigine, I felt so much clearer than I had felt in my life. The difference was as if I had been over medicated for the last 40-50 yrs. I guess it had become the norm. But since then Cognition & response time have improved dramatically. Don't be afraid of taking fewer meds.
Anything from the '80s is my go to music. Heavy on AC/DC.
I am now off the zonisamide completely, but I am still have the side effects. Another doctor and I decided to switch my antidepressant. I have not been on this medication long enough to know if it will stop the previous side effects. My tremor is less and I only seem to drool while eating - feeling like one of Pavlov's dogs. Thank you all so much for the support, understanding, and your willingness to share your experiences.
As you can tell Mary, everyone here has your back. I take 2 types each day...Lamictal and Keppra for over 10 years. It's kept me to about 3 seizures on average each year. I understand your concerns especially since your were seizure free for 2 + years. I was seizure free for almost a year and then had one. It's so depressing when one thinks they have epilepsy beat. My prayers are with you. Please come back to our network and let us know how you are doing once this med transition is ongoing.
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