What Is Your Favorite Memory Of A Doctor Who Treated Your Epilepsy? | MyEpilepsyTeam

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What Is Your Favorite Memory Of A Doctor Who Treated Your Epilepsy?

A MyEpilepsyTeam Member asked a question 💭

Dr. Krasnow! A neurologist. 1969! Patient, kind, understated. He suggested I keep my medicine for the day in a shot glass to help my memory. Dr. Krasnow was particularly gentle while talking to me of rousing me out of what was then an epileptic fog of uncontrolled seizures.

posted 4 days ago
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A MyEpilepsyTeam Member

M y favorite doctor is my neurologist Alyssa..ive been seeing her since 2016 and someti.es I feel like she knows me better than I know myself...we do virtual appointments and she can look at me in that screen and know if I'm having a good day or a bad day..

posted 3 days ago
A MyEpilepsyTeam Member

Definitely have to say this is the current one that I have a telehealth appointment with on Saturday. Haven’t even met this doctor yet but I am thankful that my neurologist was able to get me the connections I needed. I may even be able to have surgery. I will definitely keep you updated on how things are going. Still have one or two more tests left that they need me to do and I have them scheduled

posted 4 days ago
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A MyEpilepsyTeam Member

The one neurosurgeon that changed my life because the FDA couldn't. In 2011 I began having 4 to 5 seizures a day that nothing could manage. With his help I was the first patient to have the Deep Brain Stimulator for Epilepsy. By doing that it dropped the amount of seizures to one or nothing and the type of seizure changed to absence. I was happy to have worked with a wonderful neurosurgeon that is kind and caring but also happy to have a device that could finally take care of my epilepsy issue.

posted 4 days ago
A MyEpilepsyTeam Member

Our family doctor as I was growing up in Kingston, Ontario Canada, came from our family hometown in St. Anthony, Newfoundland Canada. He was hired by dad when he was 16, because he wanted to buy a 10 speed. I had gone to see him when I was 24, in 1996, and asked him to see if I had HIV. I told him the name of my 7 years (11-17) Newfoundland boyfriend's name and he knew him. When my blood test came back clean he backed my gay relationship at that age. I then started a sexual relationship with her. I did not want to infect her if I came out positive. It is now 2024 and no one else have ever entered nor ever will get between us. We have 2 daughters, 1 being trans, and both know how I lived before meeting their mom, My loving wife also know how I lived my life in my teen years.

posted 4 days ago
A MyEpilepsyTeam Member

I moved to Stamford from Hartford years ago. Dr. Louise Donahoe Resor was my Neurologist for 35-40 years. A few years ago she retired to be a Grandmother. I had my Temporal Lobectomy before then. She observed, listened, and answered questions. She was wonderful. I took all kinds of meds,dosages, and combinations. I even took part in Double-Blind Studies. With them, you do not know if you are getting a Placebo until the end. I was treated for Breast Cancer over 17 years ago. However one of my medications was making both the Chemotherapy and Radiation Treatments not work. Her Husband was an Epileptologist. He found Onfi, which was not yet FDA Approved. I bought it from Canada "for personal use only." It was sent to her office, where I picked it up. The Cancer Treatments then worked! it was approved by the FDA, finally. Then my Insurance covered the cost.

posted 4 days ago

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