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Seizures
A MyEpilepsyTeam Member asked a question 💭

Does anyone who is still in high school that has seizures have a paraprofessional

posted August 2, 2015
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A MyEpilepsyTeam Member

I was 40 and had been in a relationship and been sleeping in the same bed every single night for five years before she felt me having a seizure. I’ve never woke up on the floor but I have been a roofer for 25 years and have had several absentia seizures since having my original grand mal seizures in bed. Because I am now single and sleep alone I don’t know if the grand mals continue at night but I have had absentia seizures where I didn’t remember the occurrence at the moment but I did afterwards but pieces of what happened like what certain things looked like or what happened? It has tripped me out!!!😳😳😳. Deja vúvkind of feeling!!!

posted May 1, 2023
A MyEpilepsyTeam Member

I was being taken lot off a lot of Tegretol. my parents hired a tutor. My Learning Disability was difficult. She worked with me so I could concentrate for at least 15 minutes. There was no Special Education then. However, the schools never understood it. Each year they would put me first in the very smart class. Then when I got horribly stressed out by math, I was not able to do English, Science, Social Stub, or dies, etc.

I went to Hartford College for Women, and got an AA without math. I finally graduated UConn in Stamford. Aside from telling potential employers I had it, it did no good.

My "Guidance Counselor" said I would not graduate from Rippowam High School (class of'70), get a job or a College Degree.
Leslie

posted November 12, 2022
A MyEpilepsyTeam Member

I'm no longer in school I wish I was if this is what they are offering...,,they counted up to just past 100 - 150 seizures per day the counting got lost at 150 serizures per day...I hate that I thought the seizures were anxiety attacks or panic attacks..., but Nnnooooo...I didn't understand it at the time but I was having seizures like crazy!!! I hate them no matter how much or what type... pemeten...,,

posted March 8, 2020
A MyEpilepsyTeam Member

I too wish I had options for support when I was in school.

Back then they tried to label me. My parents would look at report cards and comments and ask me “What the hell do you think you’re doing?”

“You are so scatterbrained.”

Then I was punished for side effects of seizures and the medication.

My folks and school had zero information about epilepsy and all the ways it affected me.

Keep pushing, advocating and informing people.

That will give me peace ☮️ and regarding my traumatic experiences.

posted November 27, 2022
A MyEpilepsyTeam Member

you poor thing i might kind of understand when i first got my parent to see me have one and believe me a went up to about 10 to 20 in a row at different times of the day but the med's I'm on now are way batter and the water the or more every day and tons of rest. all are better and the stress is way down too. but i have by-polar depression too so i have work at that one day at time. i hope your can get a better plan and a set of meds that really help

posted May 31, 2021

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