A previous neurology consultant advised me after an absence seizure to increase my tegretol by 50% and he'd call me in 6 months to see how I was doing. I tried, but got toxic shock from too much tegretol. My GP was furious with consultant. I asked GP to get me second opinion from different consultant, best decision ever! Be prepared to ask for second opinions if you disagree. They don't all know as much as we ourselves know about our own bodies ! You have to be prepared to fight for your rights! 💜

I am currently on Divalproex Sodium and Clobazam. I have been on Lamotrigine, Keppra, Vimpat, Gabapentin, Topamax, and Brivlera. The only medication that helped reduce the seizures was Lamotrigine; it stopped working completely (and actually worsened my seizures) last year.

Clobazam works; however, I have to take it on an empty stomach, with orange juice to hide the taste of it. I started the Divalproex Sodium on Sunday; it is controlling my Complex-Partial Seizures; however, it takes four hours for it to work and I have to take it with food because it will make me sick if I don't.

However, the best I found are Argyle Softgels - they're Indica (I don't smoke). They usually eliminate my seizures and anxiety; I'm prescribed them. I found that they were controlling my seizures better than any medication when I was able to do things that trigger Simple-Partial Seizures without having a seizure! I discovered this in July 2019; this is what I was looking for - traditional medications, such as Ativan, don't do anything for my anxiety or seizures. I'm glad that cannabis is legal where I am. I would rather take that instead of going to the emergency room, which risks my mental health - I have Medical Post-Traumatic Stress Disorder; I have been mistreated in the emergency room that badly that I refuse to go when I have a Grand-Mal Seizure - I was scolded, by doctors in the emergency room, for having Simple-Partial Seizures if I had one in front of them - and I was there because of the seizures! WTF! Medical things trigger Simple-Partial Seizures; even reading about something medical can trigger a Simple-Partial Seizure.

i was taught to trust your dr , well , the drs i had made me a part of the opiod issue. i was 19 i wasnt thinking , but i check now

We’ve been through so many med trials with our son too who had encephalitis at age 12 and many daily generalized seizures. He tried two brain surgeries which did no good, vagal nerve stimulator implant, neurofeedback and many meds. We finally got a recommendation for a new med X-Copri from an epilepsy specialist at the University of Washington in Seattle. He was on it for one week and said, “Mom, I think it’s working”. I also did a lot of research online for clinical trials and natural supplements. First, Taurine, which is an inhibitory amino acid like GABA. That seemed to really help. Then Vinpocetine from the periwinkle plant which has also helped. Europe has actually made it into a pharmaceutical epilepsy drug. It’s online thru Life Extension for $6 for two months. Now he is 42 and finally seizure free🤞. Never give up!

From my experience, I've been on medication my whole life sometimes the doctor needs to see what medication works best for you. I've been on several medications and then the doctor would wene me off and see what works best for me.