@A MyEpilepsyTeam Member , I’m 45 & had a wonderful Pediatric Neurologist for almost 30 years. I remember one time he had me on 3 meds at one time, Mysoline, Zarontin & another one but I don’t remember what it was. I don’t know if you’re aware of the side effects of Keppra but I saw how much your son is taking of it & everyone can react differently to different meds but Keppra is known to cause mood swings, anger issues & make people not act like themselves, all known as the Keppra Rage. Keppra is also known to cause excessive drowsiness & sometimes known to cause trouble sleeping. I took Keppra in mid 2019 for 2 months & it made me so tired that I had to take a nap every day & eventually I started having trouble sleeping at night & so I got off it. On this site you’ll find mixed reviews of Keppra, some didn’t like the side effects & so like me they got off it & others didn’t have any problems with the side effects & others couldn’t find anything else to work & so they deal with the side effects. I began taking Vimpat in November 2019 & about the only issue I think I’ve had with it was when my Neurologist increased my Vimpat by 100mg in the morning & it started making my fingers shake a little & so I told my Neurologist that I couldn’t take that extra 100mg & so I went back to my other dosage but after my seizure this past January 2023 she increased it by 50mg at night. So far I haven’t had any problems. But if your son isn’t comfortable with the side effects I strongly suggest you contact his doctor & let them know what’s going on & that he’s not liking the side effects & about the increase in his seizures. Maybe they can try & make some adjustments. I’m almost currently taking Depakote & have been on that for probably about 20 years, give or take & now have Osteopenia in my left hip due to long-term use of that. Welcome to the site! When you get a chance you might go to your Story page & tell us more about you & your son. Your friend in Texas, Becky

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A MyEpile...

There are many of us , where one medication won’t work to control our seizures of the type of Epilepsy we have.

I’m on 5 medications, with the DBS ( Deep Brain Stimulation ) and still have seizures. But since I had the DBS treatment, it has reduced my seizures , by a lot.

I have what’s called Refractory Epilepsy. Basically meaning , that the medication(s) don’t work to their full potential with me.

@A MyEpilepsyTeam Member
I remember my neurologist loading up my anti-seizure meds just to stop my seizures. 1969 *whew* It was especially tough for me as a child what with growing and hormonal changes. Does your son’s MD have an explanation of his short and long term goals?
Does your insurance cover a 2nd medical opinion?
Have you taken notes of your son’s complaints? Documentation lets your MD know you are serious about your concerns. Is your MD responsive to your discussing your son’s complaints with the MD?
Thinking of you and wishing you well at this difficult time. Rest easy. And hats off to that son of yours

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A MyEpile...