This is my opinion...I say have your Dr. take you off of the topamax. I was on topamax/topiramate for 18 years and I think it's a drug that needs to come off the market. Or at least be more closely studied. I believe if you stay on it your symptoms will only get worse. I believe that as patients we MUST pay CLOSER attention to the warning signs that are given to us from the drug companies, from our pharmacist concerning the side effects of the medications that we ingest. Don't misunderstand me, no drug comes without side effects completely. We all know that. However, once we experience how a drug is reaction to our bodies it's then time to take action. Our doctors tell us, oh just give the drugs a few more weeks. Why to do more damage. Your body has to get acclimated to the medication. While yes, this is true, to a degree, @A MyEpilepsyTeam Member what you're describing, to me, goes beyond allowing your body to get used to the medication. I'm telling you, WE have to be the advocate for our health. Nobody knows our bodies like we do. Please pay attention to what your body is telling you.
We all know that epilepsy is not an EXACT DISORDER. Neurologists are discovering daily about this disorder. Discovering about what it is, about how to treat it. About what works and what doesn't work as well. So who do you think is helping them in their discovery? We are! Tell them what you feel is best for you! Yes, they may have the degree in science but we have the experience with our bodies! 🙂

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A MyEpile...

You’re very welcome. Hopefully your Dr. Will find the right medication or treatment for you.

Randy, thank you. I definitely feel is related to TV and working on my computer. I am not sure about meds as I am on a very low dose from what I have been told from others who are on it. I have been told it is not even therapeutic level for the seizures just for the migraines. They do still happen but not as often. I am only on a 50mg dose but go back in late Jan to see the Dr so will make sure to address things with him. He knows about the fogginess and all the other symptoms, but I think just trying to make sure he has the correct diagnosis for everything.

I am seeing a Dr and am not by any means trying to diagnose myself, I am trying to make sense of all the things going on and understand if they are normal for what the Dr has said I am having.

The Dr has cleared me to drive. I am not just assuming.

Everything you’ve mention is pointing to Epilepsy Symptoms. You migraines are possibly related. Watching TV, any computer format and gaming systems ( PlayStation, Xbox, Nintendo &ect. ) can tiger seizures.

You feeling foggy headed, can be from a seizure(s) or a side effect from medication. Your hangover feelings, might be from an overdose on your meds.

Your experience with people look at you funny, maybe witnessing you seizure’s .

I rarely have headaches and migraines. But there are many people with Epilepsy that do have migraines. I have had seizures from , too much TV, IPad/computers and video game consoles. I have had foggy mind, after having a severe seizure and some of the past meds I was on, had the side effect of making me feel foggy in the head. I have had seizures in public and many people who saw me, would give me stranger eyes starring at me. Some people would rush away from me, because I scared the hell out them . A few Others have came up to me , to check if I’m alright.