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Is It Possible For Seizures To Suddenly Change After Almost 50 Years?

Is It Possible For Seizures To Suddenly Change After Almost 50 Years?

In December 2021, I was driving along and suddenly felt, the best I can put it, a bit light headed which lasted only 2 or 3 seconds. The next thing I recall seeing was my vehicle about 1/4 mile down the road where I last recall being in contact with a light pole in a local restaurant parking lot with the air bag deployed and police & paramedics around me
Now in 49 years I have NEVER had a seizure in which I did not have a lengthy aura of the same pattern. Nothing changed in my life that I… read more

A MyEpilepsyTeam Member said:

All my life I've had terrible sezuires with auras and a horrible headache with extreme sensitivity to light and sound and I'd sleep for 10 to 12 hours after a sezuire and not eat or drink anything for a day after. Now when I turned 50 turning 51 my sezuires are 98% nocturnal, having them in my sleep and I now have no auras or any kind of warning signal about one will come on after a sezuire ill sleep around 6 to 8 hours being extremely drained after one and now am extremely hungry after a sezuire earing any thing and drinking a bottle or two of water afterwards also when I was younger I had terrible insomnia and for a couple of years I had a 8 to 9 hour sleep schedule now my sleep is off the charts and I have no sleep schedule nothing in my life has changed to explain the cause of any of this except my age all I know is most if not all of this happened after I started aging and having the VNS implemented in my brain.

posted 2 months ago
A MyEpilepsyTeam Member said:

Yes. On the first week after I started at Massachusetts General Hospital Treadwell Library, I took a medical textbook on Epilepsy off of the book shelf, and one of the facts about epilepsy is that it can mutate at any time and is some times doing in minor ways that you might not notice (like adding more triggers, auras, variations of the form of your partial seizures, etc.). However, it can also add additional seizures and mutate ones that you already have into a deviant of the standard form.
And in some cases, it can pack seizures together. In my case, this means that instead of my full seizure ending and coming out of it on the floor, this is a rare form of the seizure now. Instead, when the full seizure ends a Focal Onset Impaired Awareness Seizures (complex partial seizures) begins (no gap between them and my conscious mind is not present for any of it and a memory of it is not created either), thus the only way that I know when I have one of these is if someone else witnesses it and tells me the details.

The only seizures that I am aware of are the Focal Onset Aware Seizures (simple partial seizures) and these are the only ones that have an aura before them.

In the case of the times when I have a nocturnal seizure, I am usually pretty sure that I had one because it typically is accompanied by a vivid nightmare/dream that I have no trouble remembering long after I am awake. And I have a stronger headache and much more body ache then I typically have when I wake up.

And last October a few weeks after I was done with my week in EEG Long Term Monitoring, I started having some Focal Onset Impaired Awareness Seizures (complex partial seizures) that are a mutate version of it: not only are they much longer, but some parts of it are not impaired and also there are times during it when I am interacting with someone else (if someone comes into the room when I am still in it) and hearing only some of the things that this person is saying and I do not realize many things that I remember saying to this person I never actually spoke. These seizures also tend to require a lot longer recovery time than most of the other seizures.

posted 2 months ago
A MyEpilepsyTeam Member said:

As we grow or age many changes occur. Some may become diabetic, get high blood pressure-cause for this unknown but treatable. Same for epilepsy but don't worry Dr will adjust meds accordingly. When the brain is the reason it's even more bewildering. I thought what you said bout driving while not aware was funny. I've had many seizure in high or dangerous traffic areas-researched to find out why wasn't hurt? It is similar to sleepwalking I learned bout 20 years ago. The subconscious mind which steps in during a seizure keeps us safe like it does while sleepwalking. We don't know enough bout brain to explain this either. I'm just glad it works!

posted 2 months ago
A MyEpilepsyTeam Member said:

I believe anything is possible with this disease. Now I’m just speculating here, based upon my own past experience and what I have read. Personally, I rarely remembered my entire aura, and was often amazed at where I ended up. But, the brain is like any other organ, it evolves over time.

Yes I believe epilepsies change over one’s lifetime, evolving with age, changing hormonal and metabolic levels and cycles, and outside influences (everything from the barometric pressure to the amount of light we are exposed to). And, from experience, the latter can be anything from missing a dose of meds to hitting your head. For example, you might have been having an aura that whole 1/4 mile. But after impact is another story. Question: Did they do an MRI after the airbag hit you?

I don’t know if I helped you at all, but those were my thoughts at this time. You have my best wishes for your future diagnosis and treatment.

posted 2 months ago
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