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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Allahabad up
October 14
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A MyEpilepsyTeam Member

I am one of those fortunate people who had a successful surgery. They gave me three possible outcomes: 95% chance of better control of seizures, 85% chance of total control ON meds, 70% chance of total control OFF meds. I have been seizure-free for almost 26 years and off my meds for 20 years.

October 15
A MyEpilepsyTeam Member

First thing to know is that Epilepsy can not be cured.
But it is possible to get seizures under controlled. But that isn’t 100% either.

There are many of us including myself who have been on many different meds. Non of them were able to control my seizures 100%

I’ve had my left temporal lobe brain surgery. It did help reduce my seizure frequency from sever to mild and moderate . But it didn’t make seizure free.

The VNS didn’t work for me. But the DBS has worked . It’s reduced my seizure number. But I still have them.

Overall everyone is different . Some have been able to control. Their seizures and become Seizure Free. But many of us can’t control our seizures.

October 14
MyEpilepsyTeam

Can seizures stop after brain surgery, and will medication still be needed afterward? That's a great question, and the answer depends on the type of surgery and individual factors.

Brain surgery for epilepsy can be very effective. For people whose seizures start in the temporal lobe, around 60–70% become completely Show Full Answer

Can seizures stop after brain surgery, and will medication still be needed afterward? That's a great question, and the answer depends on the type of surgery and individual factors.

Brain surgery for epilepsy can be very effective. For people whose seizures start in the temporal lobe, around 60–70% become completely seizure-free after surgery. Overall, more than 85% see significant improvement in seizure control. As for medication after surgery, many people still take anti-seizure medications (ASMs) for some time following the procedure. Here's what to generally expect:

- Some people are able to gradually reduce or stop medications if they remain seizure-free
- Others may still need medication, but at lower doses
- Doctors typically monitor progress carefully before making any medication changes
- It can take months or even years before a doctor considers reducing medication

One MyEpilepsyTeam member shared: "Luckily, I am now seizure-free for four months. Before, I had seizures every night."

It's really important not to stop or change medication without guidance from a neurologist, even if seizures have stopped after surgery. Always work closely with your care team on this.

October 14

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A MyEpilepsyTeam Member asked a question 💭
Palm Harbor, FL