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How Do You Deal With And/or Release The Negative Emotions That Come With Epilepsy All That Comes With It?

How Do You Deal With And/or Release The Negative Emotions That Come With Epilepsy All That Comes With It?

There are lots of negative emotions( Anger, Emptiness, Frustration, Inadequacy, Helplessness, Fear, Guilt, Loneliness, Depression
Overwhelmed, Resentment, Failure, Sadness, Jealousy, etc.) that feed stress, help each other build and add on to the effects of anxiety disorder and the like to lead to insomnia, sleep deprivation, constantly worrying, thoughts of suicide, etc.?

Which of these have hit you the hardest?

What brings them on?

How do you personally deal with them?

And how… read more

A MyEpilepsyTeam Member said:

Back when I got the first mal seizure I was feeling very scared and alone. It was so shocking to me that I had one since I had been stable for 20+ years. When it happened again that’s when I started to get frustrated and discouraged since I had gone a while without one and then boom. Another. But above all, I was fearful that my coworkers and bosses would think I would be unable to do my job.

If it wasn’t for my best friend (who I chat with through a different site), I would have never gotten out of that “I can’t do it” mindset. I am forever grateful that he has been in my life for only two years but he has been one of my greatest comforts. I always turn to him (and this group of course!) whenever I feel down.

Lately what I have been doing to cope was turn to art and writing. It’s a great way to vent and it is quite therapeutic for me.

posted 3 months ago
A MyEpilepsyTeam Member said:

As a young child I knew know different but my parents fought to get me in to a normal school, I used to stick up for myself at school and have carried it on through my life, when I was a teenager I wanted to be the same as everyone else and drank to much when I went out and ended up in hospital after a seizure, my work life I never told anyone until I got the job, and I was suspended after having a seizure because of insurance policies, then I had my baby Mark, he was born with a double hair lip and cleft palette because of my drugs, no one told me because they knew I would stop talking the epilem, he had his first seizure after his jabs, he should not have had his measles jab but was given the tremble,they couldn't control him and he died of a seizure in bed at 2yr and 3m,in the meantime I was sterilised at the age of 22,a few years later I tried to adopt but because of my epilepsy they would let adopt a 16yr old I was 25 ,I had a reversal at Guys,apparently you have to be 31/32yrs before your sterilised that little word epilepsy again, I ended having a ectopic and trying for ivf,so now I have my family and I'm happy in my own skin.yes sometimes it's been hard, I've been depressed and tried to commit suicide, but there are a lot of people who are worse of than us,and believe me that nothing is worse than losing your child.
Be greatful for your life you are a epileptic be proud, and teach others, don't be ashamed and hide, hugs to you all that's read this, this is the first time I've shared part of life with anyone. God bless x

posted 3 months ago
A MyEpilepsyTeam Member said:

I like to watch my shows and read. I also like to study about cultures as much as I can right now in my masters class. That keeps my mind motivated. When I can I like to cook and bake.

posted 2 months ago
A MyEpilepsyTeam Member said:

I also cry extremely easy in any situation. It doesn't matter if it's sad or not. The world news is so heart rendering I really need a respite like a funny comedian. Most everyone is able to escape into reading. My AD D keeps me from enjoying the written text. Activity does seem to help and get my adrenaline flowing.

posted 3 months ago
A MyEpilepsyTeam Member said:

A star came out of no where after we had given up on a big business provider. I won't mention its name. My frustration led to immediate need for sleep to avoid the imminent seizure. We have spent hours trying to work with companies that do not understand the word SERVICE! The star was the last resort, a gentleman that was able to solve our problem in 10-15 minutes!

posted 3 months ago
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