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Middle Ear Myoclonus

Middle Ear Myoclonus

I've been having occasional juddering noises in my left ear I wondered whether anyone has this .( I did have tinnitus years a long time ago ,sounding like a humming noise ,mostly when it was quite I was on AEDs then but it stopped eventually .I don't know whether that was random or a side effect of the meds ) Having googled this juddering & yes I know I need to see someone 😀 sounds ,( pardon the pun) like muscle spasms in the middle ear. When I looked at treatment ,it mentioned muscle… read more

A MyEpilepsyTeam Member said:

I have had it from my 20s it is very common for people to get it an even more if you have epilepsy I asked the doctor an my specialist

posted 7 months ago
A MyEpilepsyTeam Member said:

I get weird noise that gets louder near the time of month & also noise in the ear like someone talking but no one else does hear it. I told my neuro about it & she put it on my file & I went for a 5 hour EEG video test & it makes my speech act up. Which my scar is on. I'm on Clobozam, Keppra, & Epival for epilepsy plus other meds but not for epilepsy.

posted 8 months ago
A MyEpilepsyTeam Member said:

The tintus is not caused by the meds it is having the seizures so much effects the ears an causes it

posted 7 months ago
A MyEpilepsyTeam Member said:

I have had it for nearly 30-40 yrs it is very prone to get when you have epilepsy

posted 7 months ago
A MyEpilepsyTeam Member said:

I'm sorry to hear that. I've never heard of anyone that has experienced that besides you. Did you call a doctor and make an appointment? If you call, maybe the doctor will be able to understand and help you. Take care and GOD BLESS!

posted 7 months ago
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