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Is Anyone A Recent VNS Recipient Who’d Be Willing To Talk To Me About It

Is Anyone A Recent VNS Recipient Who’d Be Willing To Talk To Me About It

My partner has severe, medication unresponsive epilepsy. Our neuro has been pushing for a VNS and we have an appointment with the surgeon to discuss. Just wondering what people’s experiences with VNS’s has been…

A MyEpilepsyTeam Member said:

I have had the VNS implanted, as I have been diagnosed with intractable epilepsy. There are pros and cons to the device. It hasn't rid me of seizures completely, but it has made them shorter. (Big improvement!)

posted 9 months ago
A MyEpilepsyTeam Member said:

@ that I have experienced are trouble swallowing and being SUPER emotional!!! I think that the pros outweigh the cons.

posted 9 months ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member what are some of the cons, in your opinion?

posted 9 months ago
A MyEpilepsyTeam Member said:

A VNS has helped many to control seizures. It's really a simple operation to connect micro size wires to nerve leading to brain to small magnetic device on arm. This connection allow you to interrupt the seizure. It didn't help me, removal was simple. Try it to see if it helps.

posted 9 months ago
A MyEpilepsyTeam Member said:

I realize the dr always tell the benefit but don’t tell u us the side effects. My neurologist has telling for 2 years but my family doesn’t want me to take a huge chance put a device in my body. I’m just telling u what I feel about vns. I feel vns is for those people who has uncontrollable seizures.

posted 9 months ago
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