I never thought about how hard it is for my parents until I joined this site. When I had my first seizure in the hospital I woke up to mom and dad and bunch of doctors around. My mom was crying. I said "what's wrong with you?". When they told me I had a seizure I didn't really believe them cause I'd never had any and I couldn't feel anything. All I wanted to do was go back to sleep. I'll be 42 next month my mom has took me to every doctor's appointment in the last 20 years. She's always there to talk to me or do anything for me. I've never seen a seizure I wanted to but the doctor wouldn't let me. Wish you both all the best. Prayers!

It is very heartbreaking for a parent but we must persevere to help our children move forward ❤️💙

I'm sure he appreciates all you do for him. I had bechets disease in 2000 which left lesions on my brain. I had to have surgery in 2009 to get cut out as much as possible. I still have seizures but not as much. I'm taking Keppra, Topiramate, Dilantin, and Trileptal. Now I only have complex partial seizures.

Scott Owens this sounds just like me and my son. I take him to all of his doctors appointments and keep a list of date/time of seizures and what happened in the days before. Do you have Juvenile Myoclonic Epilepsy? That is what my son has. He started dropping things in the mornings (he called them black outs) when he was 18 and at college. His doctor initially thought he was having low blood sugar in the mornings. This lasted for about 3 1/2 years until he had his first grand mal seizure. He was put on Keppra initially but that didn’t work for him. He has been on Depakote since March.

My son has grand mal seizures. It is hard to see.