It most happens early morning, im having a seizure, losing my vision, headache, sickness, dont realise it happening until i wake up. It like im unconousious because i dont know where i am for a few secoud. Im gone completely blind so i dont know what in doing until i have to shout for one of my parents. I dont always shout i do tend to go through it on my own.
I have 20 to 45 sec seziures when am in deep sleep so I know nothing about them till I can see them on the readout on my neropace when I go to my neroligest. I do know I have had a serious seziure in my sleep or a long one as I'll wake up tired and exhausted and confused for awhlie. Am having nocturnal seziures along with my controlled seziure activity during the day.
@A MyEpilepsyTeam Member:. There's a mother at this end, whose child has Dravet's Syndrome and she used to make his marijuana oil. Now, that CBD oil is available, I'm not sure if she makes it or not.
I had 2 seizures that we know of in my sleep I actually bit a piece of my tongue off. I would say tell your doctor try new medicine and get a mouth guard b4 you do the same it really hurts luckily I didnt bite my whole tongue cuz its possible
I hope you have told your doctor? And if not and you’re keeping it to
Yourself DON’T I did keep stuff to myself for years you don’t do that
I want you to tell your doctor and get help. I promise you’ll be fine
Yes, I experience exactly what you described. It is scary, especially when you cannot see anything. I see darkness and almost a static type thing when my vision starts to come to- hard to explain. It almost feels like I am fainting in my sleep, like I have gone unconscious but I am aware. I have had hallucinations during them that seem so real. But if I have a grand mal in my sleep, I will have no recollection of it, I wake up extremely sick, migraine, bit tongue. It always terrifies me and my emotions are always worse than usual afterwards, no matter which type I have. Sending lots of love your way. It’s not easy. 💛💛💛
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