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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
New Jersey, NJ

I have been on Toprimate since September 2018, i have gone all the way up tp 400mg on extended release with Onfi 20mg daily. Then i went back down to 200mg XR and CBD oil 50mg daily. Right now I am on 300mg XR daily, a waterpill during my pre menstrual cycle for catamenial epilepsy and CBD oil 75mg daily. Once I go above 200mg of toprimate i feel severe depression. It's so bad. It brings me down so much. Right now the 300mg isnt stopping my seizure activity and i still feel this dark… read more

June 21, 2019
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member i have keppra and i used to have keppra rage. keppra destroys the liver and i take milk thistle to boost the liver. and my rage is gone.
anyway i am a health nut and do all sorts of vitamins (including cbd oil). i also do deep breathing/meditation and i walks.

June 21, 2019
A MyEpilepsyTeam Member

Try Trileptal but DAW the script.
It used for many things I've been on it Aug is 20yrs.
They use it for mood disorders and bipolar I found out a few years ago.
Most Nueros have free samples so always ask so you don't fill a script as I have take 1pill and toss the Dilantin and the nuerontin
Best of luck ! Hugs

June 22, 2019
A MyEpilepsyTeam Member

Thank you so much for the suggestions ladies! I am having a hard time pin pointing the cause of the seizures. I practice yoga regularly actually I'm actually a RYS 200hr.

I mediate and i see a neuropsychologist weekly. I guess that's why it bothers me more cause i am working on myself. 🤢 I'm still on an upswing with seizure activity as of late. Thats why i was considering medication change all together.

June 21, 2019
A MyEpilepsyTeam Member

You won't regret it. Yoga clears body and mind a lot. Namaste🕉

June 21, 2019
A MyEpilepsyTeam Member

I agree! U def have to make changes within yourself to better yourself in any way possible. I recently got sick and it cldve easily been avoided, but when u let frustration and stress get the best of you, the seizures then take over. I need to do the same. I think I want to try yoga as well. It's been known to release bad energy and relax you in ways u never thght u cld. But what u are feeling, I am no stranger to, no one wants to accept this and it really keeps u in a dark place if u let it. Def try something new esp if you're a go getter. U got this!

June 21, 2019

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