I have been on Toprimate since September 2018, i have gone all the way up tp 400mg on extended release with Onfi 20mg daily. Then i went back down to 200mg XR and CBD oil 50mg daily. Right now I am on 300mg XR daily, a waterpill during my pre menstrual cycle for catamenial epilepsy and CBD oil 75mg daily. Once I go above 200mg of toprimate i feel severe depression. It's so bad. It brings me down so much. Right now the 300mg isnt stopping my seizure activity and i still feel this dark… read more
@A MyEpilepsyTeam Member i have keppra and i used to have keppra rage. keppra destroys the liver and i take milk thistle to boost the liver. and my rage is gone.
anyway i am a health nut and do all sorts of vitamins (including cbd oil). i also do deep breathing/meditation and i walks.
Try Trileptal but DAW the script.
It used for many things I've been on it Aug is 20yrs.
They use it for mood disorders and bipolar I found out a few years ago.
Most Nueros have free samples so always ask so you don't fill a script as I have take 1pill and toss the Dilantin and the nuerontin
Best of luck ! Hugs
Thank you so much for the suggestions ladies! I am having a hard time pin pointing the cause of the seizures. I practice yoga regularly actually I'm actually a RYS 200hr.
I mediate and i see a neuropsychologist weekly. I guess that's why it bothers me more cause i am working on myself. 🤢 I'm still on an upswing with seizure activity as of late. Thats why i was considering medication change all together.
You won't regret it. Yoga clears body and mind a lot. Namaste🕉
I agree! U def have to make changes within yourself to better yourself in any way possible. I recently got sick and it cldve easily been avoided, but when u let frustration and stress get the best of you, the seizures then take over. I need to do the same. I think I want to try yoga as well. It's been known to release bad energy and relax you in ways u never thght u cld. But what u are feeling, I am no stranger to, no one wants to accept this and it really keeps u in a dark place if u let it. Def try something new esp if you're a go getter. U got this!