Hi,
Since my seizures have changed over years. I am now 43 and started having seizures about 10. It used to only take one seizure med to control them all. I was controlled on 2 for awhile and now added a 3rd med. I'm just curious how many of you are on 2 or 3 meds trying to get control of your seizures? I am now on Keppra, Vimpat, and added Aptiom. Thanks:)
I know i sound like a broken record but have you tried cannabis? Seriously. Legal where you live or not....try edibles or tincture or CBD oil or vape (i dont smoke. I dont like smoking anything.) What have you got to lose?
Wow!! It sounds,exactly like me! So crazy, I never would have believed it! I (was) taking those same,drugs for a couple,years. Keppra, trileptal and lamictal.,I sometimes,also had breakthrough seizures and woke up in a hospital on an ativan IV drip! Wow,that's amazing! (After a couple years tho, I met a neurologist at mayo clinic and she told,me to stop taking the trileptal because it was simply copycat drugging the lamictal,and toxifying my liver
So I did get off it and everything was fine) however, one thing I wish someone had told me sooner is that,the,best possible thing,you can do for,epilepsy is switch to a plant based diet. I have been,vegan now for 3 years and you would amazed at how seizure free it can make you!!! Please! Be VEGAN. It will blow your mind how healthy you feel when,you,don't eat animal flesh
I am on 2 meds was on 3. I have uncontrollable seizures. I will never be controlled by meds.
Have you tried cannabis? For seizures? It works
Christopher, my neurosurgen told me at the mayo in Jacksonville that if i needed to that i could see the neurologist there for a consult. The only thing is that i saw him when i first started seeing them when i had my second witnessed seizure and he tried to get me on just one med lamictal. But boy did that not work. My current hometown neuro told me that i had been one of his hardest patients to get seizures under full control. So i don't really know where else to go. If they cant help at the mayo who can?