Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Chicago, IL

Hi,

Since my seizures have changed over years. I am now 43 and started having seizures about 10. It used to only take one seizure med to control them all. I was controlled on 2 for awhile and now added a 3rd med. I'm just curious how many of you are on 2 or 3 meds trying to get control of your seizures? I am now on Keppra, Vimpat, and added Aptiom. Thanks:)

March 1, 2018
 · 
Reactions
A MyEpilepsyTeam Member

I know i sound like a broken record but have you tried cannabis? Seriously. Legal where you live or not....try edibles or tincture or CBD oil or vape (i dont smoke. I dont like smoking anything.) What have you got to lose?

July 28, 2018
A MyEpilepsyTeam Member

Wow!! It sounds,exactly like me! So crazy, I never would have believed it! I (was) taking those same,drugs for a couple,years. Keppra, trileptal and lamictal.,I sometimes,also had breakthrough seizures and woke up in a hospital on an ativan IV drip! Wow,that's amazing! (After a couple years tho, I met a neurologist at mayo clinic and she told,me to stop taking the trileptal because it was simply copycat drugging the lamictal,and toxifying my liver
So I did get off it and everything was fine) however, one thing I wish someone had told me sooner is that,the,best possible thing,you can do for,epilepsy is switch to a plant based diet. I have been,vegan now for 3 years and you would amazed at how seizure free it can make you!!! Please! Be VEGAN. It will blow your mind how healthy you feel when,you,don't eat animal flesh

March 12, 2018
A MyEpilepsyTeam Member

I am on 2 meds was on 3. I have uncontrollable seizures. I will never be controlled by meds.

July 27, 2018
A MyEpilepsyTeam Member

Have you tried cannabis? For seizures? It works

July 27, 2018
A MyEpilepsyTeam Member

Christopher, my neurosurgen told me at the mayo in Jacksonville that if i needed to that i could see the neurologist there for a consult. The only thing is that i saw him when i first started seeing them when i had my second witnessed seizure and he tried to get me on just one med lamictal. But boy did that not work. My current hometown neuro told me that i had been one of his hardest patients to get seizures under full control. So i don't really know where else to go. If they cant help at the mayo who can?

March 12, 2018

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
California, CA