I was just told by someone in an epilepsy group on Facebook that I am part of that if your eyes are closed during a TC seizure then it's not a "real seizure,and the person is faking it" is this right? i no im epileptic im on meds but I'm kinda worried now cos from what people who see my seizures have said is that at the start of my seizures my eyes roll back in my head and my eyes close. I'm really worried ppl are going to think I'm faking wen my eyes are… read more
Yes, regarding people who act fake I tend to faze them out. One minute they act like they care, then they know more about u then u o, then pissed off with u but not to ur face.
As for someone to say u are faking, they should be ashame! Seizures and certain genes transform into something else. So don't compare urself to anyone else!
I no im epileptic have been for yrs. I think this is just bothering me more than it should. A cos im not in a great mental "dstate" like somebody else and my neurologist said. Everyone s different.
actually... they do use this to help determine what type of seizures you are having.... "PHOENIX, Ariz., June 15 — A simple but reliable way to distinguish psychogenic nonepileptic seizures from epilepsy is to determine whether the patient's eyes are closed or open, researchers here reported." http://www.medpagetoday.com/Neurology/Seizures/... tho not to see if you are "faking it" psychogenic seizures are not "fake" they simply have a different underlying cause... "What exactly are PNES?
PNES are attacks that may look like epileptic seizures, but are not caused by abnormal brain electrical discharges. They are a manifestation of psychological distress. Frequently, patients with PNES may look like they are experiencing generalized convulsions similar to tonic clonic seizures with falling and shaking. Less frequently, PNES may mimic absence seizures or complex partial seizures with temporary loss of attention or staring. A physician may suspect PNES when the seizures have unusual features such as type of movements, duration, triggers and frequency.4
What Causes PNES?
A specific traumatic event, such as physical or sexual abuse, incest, divorce, death of a loved one, or other great loss or sudden change, can be identified in many patients with PNES. By definition, PNES are a physical manifestation of a psychological disturbance and are a type of Somatoform Disorder called a conversion disorder.1 Somatoform Disorders are those conditions that are suggestive of a physical disorder, but upon examination cannot be accounted for by an underlying physical condition. Conversion Disorder is a somatoform disorder that is defined as physical symptoms caused by psychologic conflict, unconsciously converted to resemble those of a neurologic disorder. Conversion disorder tends to develop during adolescence or early adulthood but may occur at any age. It appears to be somewhat more common among women." http://www.epilepsy.com/article/2014/3/truth-ab...