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Two Of My Three Adult Children Developed Seizures Around 20years Old. I Did Not, But My Sister Did At 16 And Still Suffers At 62 Years Old.
A MyEpilepsyTeam Member asked a question 💭

How common is this?

A MyEpilepsyTeam Member

Not sure, but you can get them at any age.

How Many Of You Have Multiple Family Members With Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My mom was the only one that did,

Talking To Urself
A MyEpilepsyTeam Member asked a question 💭

Have you ever talked to yourself in full conversations or even just short sentences??

A MyEpilepsyTeam Member

Yes, I don't mind either doing it

SUDEP
A MyEpilepsyTeam Member asked a question 💭

Is it the actual seizure or is it the fact that you injure yourself into fatality that causes this to happen … can a non stop ongoing or cluster seizure actually end your life ? My son holds his breathe during his sometimes lasting up to 3/4 minutes

A MyEpilepsyTeam Member

Epilepsy may extremely bad but can be significantly changed to easy-going. That is thru not just meds or surgery but also how you decide ĥandle it with showing you control life both psychological and… read more

Have You Ever Seen Video Of Yourself Having A Seizure Or Would You Prefer To Not See Yourself Having A Seizure?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I am not trying to disagree with everyone, but it has been a blessing for the doctor and me when my husband can catch my seizures on the cell phone camera. It helps my neurologist out because I… read more

Has Anyone Else Been Told During Absence Seizure You've Been Talking To Yourself?
A MyEpilepsyTeam Member asked a question 💭

Because my dad told me I was at the top of the stairs talking to myself but what I was saying was worded like having a conversation with myself

A MyEpilepsyTeam Member

Yeh there basically the same there a few types you can have I tend to looking for stuff and repeat or just ignore people but some I'm aware and some I'm not where I can feel it or it just takes over… read more

Has Anyone With A Seizure History Had A Colonoscopy? Please Need Some Advice
A MyEpilepsyTeam Member asked a question 💭

Hi everyone would really appreciate any advice on my situation,

My mother had a brain tumor removal 7 years ago and one year after that she had her first seizure. She’s had them on off after that for a while, but they stopped for about the past two years (knock on wood)
Her seizures would be triggered by fatigue or lack of food/glucose.
Has anyone had this similar experience and had a colonoscopy done?
I’m pretty worried about the prep before the procedure because as you know you have to… read more

A MyEpilepsyTeam Member

Hi Arj, as I separately posted, recently lived through similar. Whilst taking the solution to clear colon, resistance that medications provide to a seizure is significantly reduced. This is because… read more

VNS
A MyEpilepsyTeam Member asked a question 💭

Has anyone had VNS surgery and how long does it take to slow down your seizures or even stop them. I am planning to get that surgery but afraid if it doesn't help it will still be on the biggest nerve of my body. I workout, jog and have jobs I have to pick up heavy things. Can anyone please help. Spring is coming in the Northeast ☀️ Thanks in advance!

A MyEpilepsyTeam Member

Thanks for your response!

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Do You Ever Find Yourself Talking To Yourself Now And Then, What Do You Think About It,
A MyEpilepsyTeam Member asked a question 💭

I do and find it myself a ok thing to do personally, but what are thoughts about the question here, and what do you think about it, just curious

A MyEpilepsyTeam Member

Talking To Yourself Is Normal & Helpful. Everyone Does It

Is There Any Way To Remind Yourself To Take Meds. Somedays I Forget Which Triggers Me.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I have alarms set on my phone- which is almost always close or my husband and mom, who lives with us currently, tell me it went off.