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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Tamate"

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Starting Felbertol, Any Advice?

Starting Felbertol, Any Advice?

I just started taking Felbertol, and so far it's working great. Almost seizure free. But...I know it can cause liver damage so am doing bi-weekly blood levels/labs. Any experience or advice when taking this drug would be great, I know it's a delicate if not dangerous drug.

A MyEpilepsyTeam Member said:

Your new med is exactly what your brain needed to function normally. If it was for your heart you'd be glad- sides for heart meds are far worse too. Be happy seizures are in control worry bout sides… read more

posted about 1 month ago

Can You Lose Your Memory Due To Seizures? My Husband Has Been Saying For A Week Now That He Doesn't Remember Much Of Anything Or Anyone?

Can You Lose Your Memory Due To Seizures? My Husband Has Been Saying For A Week Now That He Doesn't Remember Much Of Anything Or Anyone?

A MyEpilepsyTeam Member said:

Yes, seizure activity damages memory. I have had Epilepsy for 48 years now, there is so much I do not recall. My 80-year-old mother's memory is fantastic compared to mine. The medications also damage… read more

posted about 1 month ago

I Am From A Four Generation Family With Epilepsy. Is That Something Many Have Dealt With Or Heard Of.

I Am From A Four Generation Family With Epilepsy. Is That Something Many Have Dealt With Or Heard Of.

A MyEpilepsyTeam Member said:

There are many who have gotten Epilepsy because of family genetics.

Then there are many of us who were diagnosed with Epilepsy, from some kind of brain damage.

There are also many of us who have… read more

posted 25 days ago

VNS Magnets

VNS Magnets

Do VNS magnets run on batteries? Just wondering. My husband was wondering how they could damage computers, cell phones , and the like.

A MyEpilepsyTeam Member said:

VNs magnets dont run on any batteries except for the "battery" that is put inside your chest.

posted over 2 years ago

Do You Ever Wish Other People Could Spend A Day Walking In Your Shoes?

Do You Ever Wish Other People Could Spend A Day Walking In Your Shoes?

A couple of months ago it was confirmed that the surgery which was done to repair my knee after a bad fall (unrelated to epilepsy) didn't work. As a result I have to have part of my knee replaced due to this accident. It has left me on the door step of a very dark place that I haven't been since being diagnosed with epilepsy in 2011.

I'm coping a lot of flak from my sister and brother-in-law who think that because I can walk around the house without a crutch I should be able to so when running… read more

A MyEpilepsyTeam Member said:

It is not actually the epilepsy but the tablets that cause the tired ness make you drossy all the time an sleepy an dissy

posted 21 days ago
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Is It Safe To Wear A Custom Fit Dental Guard?

Is It Safe To Wear A Custom Fit Dental Guard?

Hello
A while back, I had a seizure that caused me to fall on my face and damage my top front teeth. It took sone time, but they’re finally fixed! My dentists and dental assistant are worried about me damaging my teeth again so they made me a custom fit dental guard. The guard is supposed to protect my teeth from grinding as well.They said the guard is optional and that I could wear it for a few hours in the day or in the night while I sleep. However, they keep highly recommending I wear it.… read more

A MyEpilepsyTeam Member said:

I do wear my guard only in the evening but it was just to keep my teeth straightened & plus my sister works for at dentist who its good to stop grinding them at night.

posted 6 days ago

Do Any Of You Drink Ginger Beer For Protection From Seizures?

Do Any Of You Drink Ginger Beer For Protection From Seizures?

From one epileptic to many others I'm just wondering how many of you drink ginger beer to protect yourself from seizures and what do you love about the taste?

A MyEpilepsyTeam Member said:

Thanks Darryl. I will try the coconut water.

posted 6 months ago

What Are Your Auras?

What Are Your Auras?

I've heard of people with epilepsy having auras where they experience a weird smell or taste. My aura is visualizing myself dying in horrific accidents that seem so real like I'm in the moment. Just last week I was washing dishes and as I'm looking down I just see myself like I'm in a giant current taking me under and there's no way or anybody to help me. My neurologist referred to this as bouts of dread and these are my auras. Does anyone else have this type of auras? They're feel so real and… read more

A MyEpilepsyTeam Member said:

Yes. Many people just think I'm trying to start problems and don't believe me about the noises and how they bother me. My memory loss seems to be getting worse too. I was just told by my supervisor at… read more

posted 3 months ago

I Was Diagnosed With Epilepsy In 2021 At 55.

I Was Diagnosed With Epilepsy In 2021 At 55.

I have had so many tests with no real answers. The docs just want to keep testing on me. Now they are talking about doing test with Phase 2 electrodes so they can find the source and dig that part out. I am having alot of stress about that. I am not confident with them. They are Stanford docs so they at the top of their field, I guess. Not sure I want to have my brain touched electrodes and really not sure about digging out parts. I have been on 5 different AEDs. Stopped the Gran Mals but having… read more

A MyEpilepsyTeam Member said:

Shoot i can barely remember anything anymore. Hit my head so many times plus someone tried killing my ass once lol. Heads a little to strong though due to all the hits. I got that super hero skull… read more

posted 27 days ago