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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Tamate"

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Odd Tastes

Odd Tastes

Does anyone else ever taste something like the way metal smells or blood before a seizure?

A MyEpilepsyTeam Member said:

After my seizures

posted about 1 month ago

Do Any Of You Know Type Of Medicine Which Can Cause Tooth Damage Or Lose Any Teeth Because Of Taking Some?

Do Any Of You Know Type Of Medicine Which Can Cause Tooth Damage Or Lose Any Teeth Because Of Taking Some?

A MyEpilepsyTeam Member said:

My 8 year old has been on Kepra, something else (brain fart) and has now been on Depakote for a year and a half. We brush her teeth religiously and she has hole in her bottom teeth out of nowhere!!

posted 3 months ago

Severe Brain Damage

Severe Brain Damage

So how does one cure autism and life threatening epilepsy which caused severe brain damage from a vaccine given during infancy that had a bad reaction and permanently destroyed my sons life ? Back in the 1990’s

A MyEpilepsyTeam Member said:

Thanks

posted 6 months ago

Sense Of Smell And Taste Affected By Temporal Lobe Epilepsy?

Sense Of Smell And Taste Affected By Temporal Lobe Epilepsy?

Does anyone who have temporal lobe epilepsy find that it changed their sense of smell and taste
For as long as i can remember my whole life i had no sense of smell, and a really distorted sense of taste. My first noticed episode that was diagnosed later as a seizure was when i was 16. With fronto-temporal lobe epilepsy. Since being diagnosed with epilepsy i had wondered if the two issues were connected at all. A couple years ago i started having episodes where i developed a sense of smell, and… read more

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member I'm the same way, but I can't smell any kind of food even if it's cooking in the oven.

posted 4 months ago

Does Anyone Else Suffer From Lack Of Appetite While On Keppra?

Does Anyone Else Suffer From Lack Of Appetite While On Keppra?

Hey! The Keppra works to control my seizures but I have no appetite. I don’t know if my sense of taste has changed due to seizures or the meds.

A MyEpilepsyTeam Member said:

I was on keppra for several years and it didn’t work, the neurologist kept increasing the dose and the side effects kept going up. One of them was lack of appetite, I lost a lot of weight.

posted 17 days ago

Have You Lost Your Taste And Smell?

Have You Lost Your Taste And Smell?

About six years ago I noticed several times when my wife would say, "Do you smell that?" and I couldn't. Then I noticed some foods like green peppers and onions that I hated I could go ahead and eat because I couldn't taste it. I did some research and one thing I found is epilepsy and brain surgery were in the list of reasons I could lose these senses. Anyone else notice it?

A MyEpilepsyTeam Member said:

During June 2003 after the pharmacist's error replaced Tegretol with some high blood pressure medicine and for the 3 weeks that followed when I was without Tegretol (my only anticonvulsant at the… read more

posted 2 months ago
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Has Anyone With Epilepsy Had COVID?

Has Anyone With Epilepsy Had COVID?

Has anyone with Epilepsy had COVID?

A MyEpilepsyTeam Member said:

Yes I did twice it made it feel very hard to breathe

posted 4 days ago

Any Good Neurologist In Albuquerque?

Any Good Neurologist In Albuquerque?

My son needs a good neurologist /epileptologist in Albuquerque New Mexico who takes Medicaid anyone know of any?... preferably one who specializes in Severe brain damage like half of his brain 🧠 and autism thanks ...

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member
You may also want to call the UNM and see if there are any other Epilepsy Centers and clinics . The Epilepsy Foundation can also help with this.

posted over 1 year ago

Tests

Tests

I haven't had any new tests like a EEG, CT scan or MRI in 6 years. I am scheduled to have the VNS surgery done on September 1st. Would it be a good idea to have new tests done before the surgery?

A MyEpilepsyTeam Member said:

My suggestions would be cannabis oil with THC which I testified for in Austin in 2015 and 2017. Due to Trileptal having the seizures controlled it was out of reach. I moved to Washington State and… read more

posted 18 days ago
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Getting Family To Understand

Getting Family To Understand

How has everyone gotten Thier family to understand what we are going through. How scary it is. How we don't have the same abilities. I have times I can't concentrate like I use to. I get frustrated when I don't remember our things don't like they use to. I was able to go do much, but now it's gone. My wife and son just don't get it. They get upset thinking I'm lazy and things like that. I am pretty sure this is there denial and coping. I know there's more to say but let's start here. Thank you… read more

A MyEpilepsyTeam Member said:

What I cannot get anyone to understand (including my neurologist and the neurological committee he is part of ) is the level of brain damage to the memory portion of my brain. And there is no… read more

posted 4 months ago