I just started taking Felbertol, and so far it's working great. Almost seizure free. But...I know it can cause liver damage so am doing bi-weekly blood levels/labs. Any experience or advice when taking this drug would be great, I know it's a delicate if not dangerous drug.
Do VNS magnets run on batteries? Just wondering. My husband was wondering how they could damage computers, cell phones , and the like.
A couple of months ago it was confirmed that the surgery which was done to repair my knee after a bad fall (unrelated to epilepsy) didn't work. As a result I have to have part of my knee replaced due to this accident. It has left me on the door step of a very dark place that I haven't been since being diagnosed with epilepsy in 2011.
I'm coping a lot of flak from my sister and brother-in-law who think that because I can walk around the house without a crutch I should be able to so when running… read more
A while back, I had a seizure that caused me to fall on my face and damage my top front teeth. It took sone time, but they’re finally fixed! My dentists and dental assistant are worried about me damaging my teeth again so they made me a custom fit dental guard. The guard is supposed to protect my teeth from grinding as well.They said the guard is optional and that I could wear it for a few hours in the day or in the night while I sleep. However, they keep highly recommending I wear it.… read more
From one epileptic to many others I'm just wondering how many of you drink ginger beer to protect yourself from seizures and what do you love about the taste?
I've heard of people with epilepsy having auras where they experience a weird smell or taste. My aura is visualizing myself dying in horrific accidents that seem so real like I'm in the moment. Just last week I was washing dishes and as I'm looking down I just see myself like I'm in a giant current taking me under and there's no way or anybody to help me. My neurologist referred to this as bouts of dread and these are my auras. Does anyone else have this type of auras? They're feel so real and… read more
I have had so many tests with no real answers. The docs just want to keep testing on me. Now they are talking about doing test with Phase 2 electrodes so they can find the source and dig that part out. I am having alot of stress about that. I am not confident with them. They are Stanford docs so they at the top of their field, I guess. Not sure I want to have my brain touched electrodes and really not sure about digging out parts. I have been on 5 different AEDs. Stopped the Gran Mals but having… read more