Does anyone else ever taste something like the way metal smells or blood before a seizure?
So how does one cure autism and life threatening epilepsy which caused severe brain damage from a vaccine given during infancy that had a bad reaction and permanently destroyed my sons life ? Back in the 1990’s
Does anyone who have temporal lobe epilepsy find that it changed their sense of smell and taste
For as long as i can remember my whole life i had no sense of smell, and a really distorted sense of taste. My first noticed episode that was diagnosed later as a seizure was when i was 16. With fronto-temporal lobe epilepsy. Since being diagnosed with epilepsy i had wondered if the two issues were connected at all. A couple years ago i started having episodes where i developed a sense of smell, and… read more
Hey! The Keppra works to control my seizures but I have no appetite. I don’t know if my sense of taste has changed due to seizures or the meds.
About six years ago I noticed several times when my wife would say, "Do you smell that?" and I couldn't. Then I noticed some foods like green peppers and onions that I hated I could go ahead and eat because I couldn't taste it. I did some research and one thing I found is epilepsy and brain surgery were in the list of reasons I could lose these senses. Anyone else notice it?
My son needs a good neurologist /epileptologist in Albuquerque New Mexico who takes Medicaid anyone know of any?... preferably one who specializes in Severe brain damage like half of his brain 🧠 and autism thanks ...
@A MyEpilepsyTeam Member
You may also want to call the UNM and see if there are any other Epilepsy Centers and clinics . The Epilepsy Foundation can also help with this.
I haven't had any new tests like a EEG, CT scan or MRI in 6 years. I am scheduled to have the VNS surgery done on September 1st. Would it be a good idea to have new tests done before the surgery?
How has everyone gotten Thier family to understand what we are going through. How scary it is. How we don't have the same abilities. I have times I can't concentrate like I use to. I get frustrated when I don't remember our things don't like they use to. I was able to go do much, but now it's gone. My wife and son just don't get it. They get upset thinking I'm lazy and things like that. I am pretty sure this is there denial and coping. I know there's more to say but let's start here. Thank you… read more