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own quiet day when symptoms from epilepsy might occur from either an episode or prescription side effects Or how often you feel annoyed by being bothered by other’s constantly being questioned of our silly things. I’ve gotten to the point that I absolutely hate texting from a cell or having text coming through on my cell. Normally when I get these days, I normally stay in my pjs and robe for the day. Family members don’t get the message that I don’t want to be bothered. I just want my day to… read more
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Members connected deeply over the desire for quiet, restorative days while living with epilepsy, with many sharing how exhausting it can be to... Read more
Myself I enjoy being alone, I have times where I'll get in contact with an old friend or vice versa. I'm friends with neighbors I'll see from time to time, thankfully my family still living live a distance so I have a lot of a lone time I enjoy doing what I want.
I have those days more often than I want to admit. I don’t want to see, look at, talk or answer questions whether it’s over the phone, text or email or whatever. I just want to do my own thing when I want how I want. So I’ll mute the phone-answer anything important like dr office or something like that, but otherwise I don’t even answer the door. If u want to be left alone- do. Everyone knows not to panic if I don’t answer unless it’s been a couple days and I’ll text or email the ppl who usually text or call and tell them that I probably won’t respond to anything for the day, so don’t worry or bother coming over to check on me. U’d be surprised at how well they take it. Most of them understand that I just want to be left alone and they respect my feelings and leave me alone. I still have a couple friends who will text me too make sure I’m still alive and haven’t had a bad seizure or a stroke, I text back a thumbs up 👍🏽 and they leave me alone again. It’s nice that they just want to make sure I’m ok and I appreciate that greatly. I don’t end up with 50-100 texts a day and I’m not answering calls all day. I get my peace and quiet and they have the peace of mind knowing that I’m ok and just want to be left alone
Yes I do have those days
Rhondaschnee, i’m constantly having to answer text questions on a daily basis on unstoppable questions and I’m trying to figure out how to approach this constantly being told that I need it when I know full well that I don’t the way I see it. It’s more of a they want to, but I don’t need it. I’ll give you a good example that I came over this morning and said she needed to look at me while she just saw me yesterday why does she need to look at me again today? It very much noise me and I’m trying to figure out how to approach this. do the fact I just wanna be left alone
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