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My husband experiences tonic-clonic seizures without any warning or aura. I am therefore very nervous to ever leave him alone but, unfortunately the reality of life is we can’t be together 24/7, so wondered how others manage this day to day.

October 13
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A MyEpilepsyTeam Member

Good post, I have had that happen to me on occasion recently and wasn't expecting it, and was just going to the bank and had it there and then came to and found a bunch of the fire department and paramedics also there , I didn't freak out about the situation that took place, the staff just did what they thought was the best thing to do since they had no idea of what I had and have as a condition I accepted and live with, and they I think wanted to take me to the hospital but I didn't go and signed a waiver and went through the rest of my day and kept going, I don't feel it is something I am ashamed of anymore and a condition or not does not define me or anyone else in my opinion and I did mark it down and do let my doc know about the seizures I have when it is time to let them know about it and go from there like always, but get people's opinions here which is ok with that and then go to the medical personnel he is being seen by and good luck with your outcome with it my opinion here amen

October 13
MyEpilepsyTeam

The worry you're feeling is completely understandable, and you're definitely not alone in this. Many caregivers of people with epilepsy share the same anxiety about leaving their loved one, especially when seizures come without warning.

One MyEpilepsyTeam member shared a relatable moment: "My daughter is on the plane and Show Full Answer

The worry you're feeling is completely understandable, and you're definitely not alone in this. Many caregivers of people with epilepsy share the same anxiety about leaving their loved one, especially when seizures come without warning.

One MyEpilepsyTeam member shared a relatable moment: "My daughter is on the plane and away for the next 5 weeks. As a parent I cannot control her seizures, I cannot be there every time to hold her hand... I have to let go, let her be brave, live life."

It's a hard balance, but there are practical ways to feel more at ease. Here are some strategies other caregivers use to manage day-to-day:

- Seizure alert technology — Devices like the Embrace bracelet can detect a seizure and send a text or call alert to caregivers you assign, even when you're not there
- Medical alert bracelet — This helps anyone who finds your husband during a seizure quickly understand his condition and history
- Build a support network — Identify trusted family or friends who can step in when you can't be present
- Seizure first aid training — Ensure people around your husband regularly know what to do if a seizure happens

Having these layers of support in place can make time apart feel much less frightening for both of you. It's also worth remembering to take care of yourself too. Caregiver stress is very real, and maintaining your own wellbeing actually makes you a better support for your husband. Connecting with an epilepsy caregiver support group can be a great outlet to share experiences and pick up tips from others in the same situation.

October 13

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