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A MyEpilepsyTeam Member asked a question 💭
Portage, MI

My wife and I were heading home from Bonners Christmas store. We were trying to get a motel in Frankenmuth, Michigan, we were trying to get a hotel room.there was no rooms , I know that we talked and said we would drive 20 miles and try again, my wife had gps. Give her directions home and I had my phone gps trying to find a motel . Which was on the same way we were going. I told my wife we needed to get off at the next exit , she said that she knows. So she drove by the next exit was 20 miles… read more

5 days ago
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A MyEpilepsyTeam Member

With your wife what can I say. I'm 67yrs and have been married for the past 37yrs.
I have suffered from Epilepsy all my years.
She has been a savior for me in the married years.
She cares for me and more times than few in the past few years she can quietly show being upset.
I best believe it is part of the aging process.
however, I know what it is like to be upset and hungry also and I begin to have an attitude.
Driving I stopped when my mental ability could not keep up with the traffic around me. I became a hazard to the road, and I can deal with that.

Knowing that I can order almost anything I want off the computer gives me freedom to keep my daily activities to the best norm I can possibly have. If your wife can except that she herself will relieve some stress.

Memory is a completely different story.
Yes, I also have issues holding conversations with people. I at times can't find the words to speak leaving me feel well embarrassed.
It's funny after a day or too the conversation comes right in my mind remembering every detail. I interrupt in the conversation because after 2 minutes I don't remember what he said.
Only to remember long after the conversation is through.
Seems no one understands.
You say you use a Cain.
I'm not there yet but my right leg needs a knee replacement the shots are not working as well, and I am taking more Acetaminophen these days

Well, I said enough
I wish you luck from an old Epileptic

Best wishes

4 days ago
A MyEpilepsyTeam Member

You said you didn’t eat for awhile and getting migraines then you truly hungry, maybe dehidrate.

It is possible for seizure and medication side effect can cause those as well.

5 days ago
A MyEpilepsyTeam Member

There were many triggers that day! Not having eaten, anger, frustration over not finding a room in a hotel and trying to find another!

4 days ago
A MyEpilepsyTeam Member

on trips pack a small igloo type cooler with bottled water and ice coffee drinks along with snacks / small sandwiches, candy etc whatever floats both of your boats in the hungar / taste catagory. Also take your next dose of meds in case of unforseen delay(s).

4 days ago
MyEpilepsyTeam

First, what a day! That was a perfect storm of seizure triggers all hitting at once — and honestly, anyone would have struggled in that situation, epilepsy or not.

What happened to you that day involved several known seizure triggers stacking up together:

- Hunger (not eating since 11am)
- Exhaustion and physical pain
- Show Full Answer

First, what a day! That was a perfect storm of seizure triggers all hitting at once — and honestly, anyone would have struggled in that situation, epilepsy or not.

What happened to you that day involved several known seizure triggers stacking up together:

- Hunger (not eating since 11am)
- Exhaustion and physical pain
- Stress and anger
- Bright sunlight directly in your eyes
- Sensory overload from navigation confusion

When multiple triggers combine like this, the brain becomes overwhelmed, making it much harder to think clearly, regulate emotions, and communicate calmly. For future trips, having a simple plan in place can really help defuse these moments before they escalate. Some things worth considering:

- Eat before and during long trips — keeping snacks in the car can prevent hunger from becoming a trigger
- Sunglasses — polarized ones can really help with sun glare and headache triggers
- Agree on one GPS before leaving — two competing directions is a recipe for frustration
- Have a code word with your wife — something simple either of you can say when things feel like they're escalating, as a signal to pause and breathe
- Rest stops planned ahead — building in breaks before exhaustion sets in

Keeping a trigger journal between trips can also help identify patterns, so future outings can be planned around avoiding the worst combinations. About feeling like your wife doubts you — that pain is real and valid. Many MyEpilepsyTeam members share that same frustration of feeling like their judgment isn't trusted anymore.

A calm conversation at home (not in the car, not when stressed!) about how you want to be treated as an equal partner in decisions could go a long way. Letting her know specifically what feels dismissive, and what support actually looks like to you, can help her understand better.

You clearly love each other deeply. That's the strongest foundation there is for working through this together.

5 days ago

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