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A MyEpilepsyTeam Member asked a question 💭
Stockport, UK

Hi everyone, I wanted to share a quick update on my health. I’m dealing with a very rare condition where my immune system—which is supposed to protect me—has mistakenly gotten confused and started a low-grade inflammatory attack on healthy tissue in my nervous system
Doctors call this a dysimmune or vasculitic process, and it’s causing some neurological signs like tremors and focal seizures (impaired awareness epilepsy). It is super rare—only about 2 to 40 out of every million people… read more

October 3
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MyEpilepsyTeam

Thank you for sharing your update — that sounds like a lot to navigate at once, and it's clear you're approaching it with real strength and awareness.

Focal impaired awareness seizures (sometimes still called complex partial seizures) are actually the most common seizure type in adults with epilepsy, even if the underlying Show Full Answer

Thank you for sharing your update — that sounds like a lot to navigate at once, and it's clear you're approaching it with real strength and awareness.

Focal impaired awareness seizures (sometimes still called complex partial seizures) are actually the most common seizure type in adults with epilepsy, even if the underlying cause in your case is quite rare. Here's a quick overview of what focal impaired awareness seizures typically involve:

- Reduced awareness — many people can't recall events during the seizure
- Automatisms — involuntary movements like lip smacking, hand rubbing, or aimless walking
- Blank staring or appearing unresponsive to others
- Confusion during and after the seizure

Some people don't even realize they've had one, especially if seizures occur during sleep. The good news is that these seizures are often manageable. Anti-seizure medications are typically the first line of treatment, though finding the right one can take some patience and adjustment with your neurologist.

If medications aren't fully controlling seizures, an epileptologist (a neurologist specializing in epilepsy) can help explore additional options. It sounds like you're already working closely with specialists, which is exactly the right path. 💪

October 3
A MyEpilepsyTeam Member

I’ve had focal impaired awareness seizures for 35 years nonstop

October 4
A MyEpilepsyTeam Member

I have Focal Impairment Awareness.
AKA Complex Partial seizures.

October 3

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