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I am a mom, a wife! This affects so many different aspects of my life…including time with my family….a lot of GUILT even though I know it’s not my fault!
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Members responded with deep understanding to the question about extreme fatigue from medication side effects, with many sharing that sleeping... Read more
First of all, the guilt you're feeling is completely understandable — but you're right, it is NOT your fault. You're dealing with something really hard, and the fact that you keep showing up for your family says a lot about you. 💙
Fatigue is one of the most common and frustrating parts of living with epilepsy. People with Show Full Answer
Thank you for this positive feedback! I’m currently on 2 meditations about to be on 3 to get me through testing for surgery
@A MyEpilepsyTeam Member , I’ve been on Vimpat since late 2019. At first I think I started out at 1 100mg tablet twice a day & eventually bloodwork was done & Vimpat level was low & I had a seizure & doctor increased my morning Vimpat but it started making my fingers shake a little & so I told her that I would have to go back to the 1 pill in the morning & 1 pill at night. Eventually she increased my night dosage to 150mg & even though I have had a few seizures, I haven’t had anymore shaking in the fingers. I hope things can get worked out with your medicine to where you won’t be as tired. Good luck. Take care. Your friend in Texas, Becky
I'm reading this after waking up from a 4-hour nap. I can definitely relate. I work during the week, so adrenaline carries me through that mostly, and then on the weekends my body is DONE. Try to be gentle on yourself. I know it's hard, but your body has to recover at some point. I have a husband and 5-year-old son, so I know what you mean about the guilt. I always have so many plans and to do lists in my head, abd then when I get very little or none of it done, I feel that guilt too. I'm blessed to have a very understanding and helpful husband. I know the guilt is hard to shake, but it's also a choice that we have to make, and we can change our mindset gradually. Right there with you. Get the rest that you need so you can enjoy your time with your family after your body recovers. 💕
I’m am up and down all night long, I dream a number of times and that what wake me up. Sometimes it’s nightmares wake up screaming, and my wife will wake up and tell me. Then I wake up and feel wide awake and 20 minutes later I’m exhausted. It’s a lot worse since I had my last seizure. I see the neurologist. Tomorrow I hope see help me. I want to get in the garage and do something with my hands. I sleep with headphones and listen to Utube on how to do things. Or my bible app that is nice
If anyone has a tip on how to get a full night sleep please let me know
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