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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
San Jose, CA
September 23
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A MyEpilepsyTeam Member

I have refractory focal RTLE, hyperPOTs, hEDS and MCAS

October 6
A MyEpilepsyTeam Member

I can tell the difference. After a seizure, Im confused, fatigued and pain where it ussually wouldnt happen like in my eyes for flipping them over. I dont have those side effects when i faint due to POTS.

September 24
MyEpilepsyTeam

There is actually a MyPOTSTeam community for people living with POTS! It's part of the same family of condition-specific support communities as MyEpilepsyTeam.

It's worth knowing that POTS can sometimes be relevant to epilepsy too — fainting episodes caused by POTS can look a lot like seizures, which can occasionally lead to Show Full Answer

There is actually a MyPOTSTeam community for people living with POTS! It's part of the same family of condition-specific support communities as MyEpilepsyTeam.

It's worth knowing that POTS can sometimes be relevant to epilepsy too — fainting episodes caused by POTS can look a lot like seizures, which can occasionally lead to misdiagnosis or confusion about what's actually happening during an episode.

If you ever notice episodes that don't quite match your usual seizure pattern, it's always worth mentioning to your neurologist.

September 23

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