Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Bastrop, LA
September 18
 · 
Reactions
A MyEpilepsyTeam Member

My mom just writes the time of my seizures on days on the calendar

September 19
A MyEpilepsyTeam Member

I was using the Notes app on iPhone keeping information for years, we're talking at least three to four. Then after I found Apple Journal app looking into how easy it was to use and how much more beneficial it would help in providing detail in comparison to what I was using I began to use Apple Journal app as I could actually begin a brand new journal called Epilepsy then every day I had a seizure title it and provide the best detail of what took place during the situation. I found Apple Journal to be very helpful as Apple Journal allows me to set a date to each seizure that takes place at the top then underneath I can give the best possible detail.
I also provide information about recovery information in the Apple Journal as I feel it is valuable especially when massive migraines are involved and there has been medication taken to manage them because the migraine lasts for more than 24 hours.

September 19
A MyEpilepsyTeam Member

I use a travel calendar. I write down my the amount of seizures I had for that day. I also write the time down. I bring it to my Epileptologist to count my seizures from our last meet.

A planner calendar could help if you have many seizures a month

September 18 (edited)
A MyEpilepsyTeam Member

Cell phone app medical!

September 18
MyEpilepsyTeam

Great news — there are several solid options for tracking seizures, and finding the right one really comes down to personal preference!

Here are some popular choices:

- Seizure Tracker app — A widely used digital option that many people with epilepsy find helpful for logging seizures on the go
- Epilepsy Foundation website — Show Full Answer

Great news — there are several solid options for tracking seizures, and finding the right one really comes down to personal preference!

Here are some popular choices:

- Seizure Tracker app — A widely used digital option that many people with epilepsy find helpful for logging seizures on the go
- Epilepsy Foundation website — Offers free downloadable seizure diary resources you can print and bring to your doctor
- A simple notebook or spreadsheet — Sometimes the old-fashioned way works just as well! Whichever method is chosen, it helps to log key details each time a seizure occurs, such as:

- Date, time, and duration
- What was happening beforehand
- Sleep quality and stress levels
- Food, hydration, and any medication changes
- Environmental factors like loud noises or temperature changes

A MyEpilepsyTeam member shared that keeping a journal helped them discover their trigger was low blood sugar and dehydration — something they hadn't connected before. Tracking over time can reveal patterns that are really valuable to share with a healthcare provider.

September 18

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Troy, IL