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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
London, UK

Not a nice thing to take someone’s voice.

September 7
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Reactions
A MyEpilepsyTeam Member

Hi Sean! I’m glad your troubles have left.

September 10
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I’m just talking about my troubles with the VNS. I still have epilepsy and think about suicide

September 10
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >
A MyEpilepsyTeam Member

I use to have the VNS and at first I had all of those troubles but eventually it all got better

September 7
MyEpilepsyTeam

It sounds like you might be referring to a VNS (Vagus Nerve Stimulator)? If so, that frustration is completely understandable — voice changes and hoarseness are real side effects that can feel like a big trade-off.

Some of the known side effects of VNS include:

- Hoarseness or voice changes
- Trouble swallowing
- Coughing
- Show Full Answer

It sounds like you might be referring to a VNS (Vagus Nerve Stimulator)? If so, that frustration is completely understandable — voice changes and hoarseness are real side effects that can feel like a big trade-off.

Some of the known side effects of VNS include:

- Hoarseness or voice changes
- Trouble swallowing
- Coughing
- Throat discomfort

These effects can be really disruptive to daily life. It's worth talking to your neurologist about adjusting the device settings, as sometimes lowering the stimulation can help reduce these side effects without compromising seizure control.

September 7

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Pittsboro, NC