Powered By
My son has right frontal lobe dysplasia. Diagnosed at 16months. For 4 years hes been on keppra, until he started having breakthroughs. Which we've never seen before, focal aware seizures. I wanted to switch to briviact anyway, so we did, and it worked for a good month. A higher dose only made his behavior crazy. So they added lacosamide and weaning briviact. he was still having breakthroughs and more of them a day, so they stopped the wean of briviact. Still having them, especially at night or… read more
Many of us who have had experience with seizure medicine know there's NO easy solution, and wish we could hand a 1,2,3 guide on what to do for your son. I'm not cold hearted, because I love your boy more than you'll ever know, but here's the facts. Each brain along with how any particular seizure or seizures is extremely individual and in order for you and your medical team to find what's best for your son isn't necessarily going to simple or ever a solution once the seizures are under control for x amount of time, because for many of us this is a lifetime of continuous challenges and changes. I'm not about to tell you all 54 years, but I been on and off about every Anticonvulsant medicine ever made and many that aren't FDA approved over the years, along with two brain surgery and still have seizures on two seizures meds.
Love your boy and know he's done nothing to deserve these seizures.
Much kindness and love
It’s more up to the Dr. the Dr. knows what meds best helps your son for his kinds of seizures.
Overall it’s not easy finding the right meds for many of us. .
We all react differently to meds. What may not work for your son may work wonderfully for someone else
Then there are people like myself. I’ve been on many different seizure meds throughout my life. Non of them worked 100% . I have Refractory Epilepsy ( I’m resistant to the meds ).
Today my seizure are still not 100% control. But my DBS ( deep brain stimulator ) has helped reduce my seizures .
What a journey you and your son have been on — navigating all of this with a young child takes incredible strength and persistence. These are really important questions to bring to his neurologist, but here's some helpful context.
Lacosamide and oxcarbazepine are both sodium channel blockers. Some people who don't respond Show Full Answer
Join
Your Privacy Choices
