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The one and only constant trigger that causes my seizures is high blood loss. Both times that I've donated blood I had seizures, and every time I've needed to do a blood sample that was over 1 vial, I had a seizure. Other than that, I've got no idea what the other triggers are. I've had seizures during dinner, while opening up a suitcase, after accidently cutting myself, while cooking... I have no idea if there is a constant underlying trigger.
@A MyEpilepsyTeam Member my was also a high temperature when I was 1 and it caused me to have seizures since then.
Stress, getting overheated, that's what caused my seizures. When I had my temporal lobectomy, I found it was a 105 fever at age 3 that caused my epilepsy.
I didn't know my triggers for a long time and then figured out partly with the help of my Neurologist that in my case its a combination of things. Mainly poor sleep/sleep habits and stress.
Stress triggers my seizures!!!
That pattern with blood loss is really worth paying attention to — and it makes a lot of sense to flag it with your neurologist if you haven't already. Blood loss can affect blood pressure and oxygen levels, both of which can influence seizure activity.
As for the other seemingly random seizures, you're definitely not alone Show Full Answer
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