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A MyEpilepsyTeam Member asked a question 💭
Marrero, LA
August 25
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MyEpilepsyTeam

What are the best glasses for both indoor and outdoor use for photosensitive epilepsy?

Finding the right glasses can make a real difference in managing light-triggered seizures. The most well-researched option is the Zeiss Z1 lens — a deep, dark blue lens that has shown impressive results in studies.

In one study, this lens Show Full Answer

What are the best glasses for both indoor and outdoor use for photosensitive epilepsy?

Finding the right glasses can make a real difference in managing light-triggered seizures. The most well-researched option is the Zeiss Z1 lens — a deep, dark blue lens that has shown impressive results in studies.

In one study, this lens eliminated photosensitive seizure activity in nearly 76% of participants, and reduced it in another 18%. That's pretty remarkable for a pair of glasses! Here's a quick breakdown of lens options to consider:

- Zeiss F133 Z1 lenses — The gold standard, available in glasses or goggles. Best if you can access them, though they can be hard to find and may not be covered by insurance.
- Blue lenses — A good alternative if Zeiss lenses aren't available, and easier to obtain.
- Tinted lenses (any color) — Some MyEpilepsyTeam members report these help significantly, even if not blue specifically.
- Neutral density or dark lenses — Can also reduce light intensity and may help in triggering environments.

A few MyEpilepsyTeam members have shared positive experiences. One noted that Zeiss goggles helped them get through an entire live show with strobes, while another simply said their tinted glasses "really helped."

It's worth talking to your neurologist before choosing, as they can help determine the best fit for your specific triggers and may assist with insurance coverage.

August 25
A MyEpilepsyTeam Member

And boy do they work

August 25
A MyEpilepsyTeam Member

I used to have transition glasses ( no prescription lenses, just the transition), but as my seizures progressed they didn’t work for me anymore and my neurologist recommended the Z1’s. They are expensive but they are guaranteed for life including scratches, breaks etc. The only thing u need to do is buy the frames. It’s cloudy and still raining here, but I needed mine for the car lights and the florescent lights at the drs while getting my Botox shots for my migraines. When I got mine, they were only made in Germany, so it took a couple months before I got them. I swear by them

August 27
A MyEpilepsyTeam Member

I use Spy+ there wrap around glasses that stop the light getting in the corner of your eyes
they are blue or brown tinted
just Google epilepsy glasses and they should come up
they are expensive but they are worth it

August 26
A MyEpilepsyTeam Member

I do not know what that is, but often the Doctors put rapidly flashing
Lights to look at. They want to see if a seizure happens. I do not know
about the glasses either..
I wear Progressives. They become darker if going outside, or lighter when I
am inside.

LeslIe Weinberg
(Email address can only be seen by the question and answer creators)

August 26

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