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I'm trying to figure out if I had a couple night seizures this week.

A MyEpilepsyTeam Member asked a question 💭
Minneapolis, MN

I have autoimmune and musicogenic epilepsy. Music has always caused seizures so I wear earplugs in every store with the overhead music. I haven't been reacting to it like normal so I've been watching lots of Broadway on YouTube since I usually can only watch a couple clips right after I take my medicine. I've also gone shopping twice since I haven't been reacting. I'm also trying to fight a cold so been doing a lot of cough drops and OJ since I'm told not to take cold medicine. I've also… read more

August 20
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A MyEpilepsyTeam Member

Hallo Kris .. this be William .. as most .. about 90 percent of my seizures be nocturnal .. both focal aware and focal unaware .. what you say about feeling that you be in your throat catch my eye .. you be first person ever I meet to have this feeling.. similar to what I be having .. only I be feeling I be in my right lung .. which be damage from premature birth .. and currently nonfunctional in me .. I feel I be in there .. trying to encourage my scarred lung to work again .. you say this happen because you be sick .. and tbis happen to me when I be suffering right lung collapse .. neurologist say this be a bit like a hallucination .. that I be feelig I be in there .. though I not be .. this never happen unless I have right lung collapse .. and I tnink I be able to fix somehow ..unlike a dream that you cannot remember when you awake .. i be able to relate all that happen .. doc say this because I suffer rare epilepsy called ictal asystole that affect my heart xnd lung function .. mine be the only case he ever see .. maybe your being sick plus the caffeine trigger this in you .. and sometimes the meds cause weird reactions themselves .. and dose may need tweaking .. make me feel a bit better I be not alone in this happening to me .. with epilepsy there be always something new to be learning .. hugs and prayers from William and Jen 💜💙🤗🤗🕊🕊

August 21
A MyEpilepsyTeam Member

Do you normally have night seizures?

August 20
MyEpilepsyTeam

What a week! There's actually quite a bit going on that could be relevant here. Let's break it down.

Several things this week could have raised seizure risk:

- Increased music exposure — Watching extended Broadway content is a significant change from your usual routine of just a couple of clips. Even if you're not noticing Show Full Answer

What a week! There's actually quite a bit going on that could be relevant here. Let's break it down.

Several things this week could have raised seizure risk:

- Increased music exposure — Watching extended Broadway content is a significant change from your usual routine of just a couple of clips. Even if you're not noticing your typical reaction, that doesn't necessarily mean your brain isn't being affected.
- Being sick — Fighting a cold puts real stress on the body. Illness, fever, and general physical strain are well-documented seizure triggers. Dehydration from being sick can also play a role.
- Caffeine — The daily mini-Coke adds caffeine into the mix, which can affect brain activity and sleep quality. The gurgling sensation you're waking up to is worth paying attention to. Nocturnal seizures can sometimes cause muscle activity in the throat and jaw area. However, the stuffiness and sore throat from your cold could also explain that feeling.

Signs that *might* suggest a nocturnal seizure include:

- Waking up unusually exhausted or confused
- Night sweats
- Unexplained muscle soreness
- Difficulty concentrating the next day

The absence of tongue biting is a good sign, but it doesn't rule anything out entirely. Given the combination of increased music exposure, being unwell, and the unusual morning symptoms happening two days in a row, this is really worth a conversation with your neurologist or care team soon — especially before continuing the extended Broadway sessions or more shopping trips without earplugs.

It would be worth keeping a note of exactly what you experienced each morning to share with them.

August 20
A MyEpilepsyTeam Member

Only when I was first diagnosed. I take a higher dose of meds in the evening.

August 21

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